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Members responded to a question about dizziness after a multiple myeloma diagnosis, sharing their own experiences and practical tips for... Read more
I agree with what everyone has said. It's nice to know that this is probably due to the myeloma and not some other issue. Definitely keep up with your blood work and also the other suggestions made, Excuse me for mentioning it, but you might want to step away from that big glass of wine, 😁
Paula, @A MyMyelomaTeam Member, @A MyMyelomaTeam Member
Hello. I met w Dr. Landgren today. He asked me how I was feeling, I said, i felt good, except for the neuropathy and all things considered UNTIL this dizzy spell/ear ringing started happening. I told him my get up and go got up and went 😊 I said the tests I have had have all been normal (MRI, 🧠, EEG and ENT) but that I don’t feel normal.
He said the good news is that my myeloma labs are stable and at or below where they were 2 years ago…based on my labs, he doesn’t think I am progressing and sees no link between my dizzy issue and smoldering condition. He said my calcium is 10.0 and the other calcium labs of 10.2 and 10.3 with my symptoms are NOT indicative of hypercalcemia. I asked what a concerning number would be and he said 11 or higher depending on the symptoms and to coordinate with local primary doctor and inner ear doctor and neurologist to vett out the dizzy/ear ringing issue. I explained I will seek a second opinion on the ENT assessment, where they said ‘no inner disease’ and recommended only hearing aids. I told him the hearing test was flawed bec my ears were ringing so much during audiology test, it was hard to hear the beeps.
Anyway, he said it was good the brain 🧠 mri and eeg ruled out any abnormalities and said again from a myeloma labs perspective, that I am stable and will see him again to review the next 90 day labs. I just don’t feel stable or normal right now.
That was encouraging news but I still have the dizzy/ear ringing issue to deal with, to find the cause, it’s not as bad in general but this morning it was not good. Not knowing the cause is hard but I will see my primary on Friday and go from there, the nephrologist and Landgren agreed that I should seek a second opinion from the primary and get another ENT specialists to evaluate for inner ear issues.
I did sort of ask him about what you mentioned, about picking which treatment to try, alternatives. he didn’t really want to discuss treatment today because he said I am stable and no need to stress about that and that basically, we would cross that bridge if/when we get to it, and that there are various options…for what that’s worth.
That’s all for now. Thanks for your message. 🌹
@A MyMyelomaTeam Member,
I hope you don’t feel alone with your dizzy spells. Are they getting any better?
Paula🌹
Hey Sally. I was dizzy on Revlimid. Drinking lots of water helped. Taking it in the evening helped. Also, being anemic can sure make us dizzy so hoping your blood counts are good. I take my blood pressure at home to make sure it's in range. It's probably a good idea to review your meds to see if they are the culprit. Several people on here gave lost weight and no longer need blood pressure medication 🙃
I had slight moments of dizziness or equilibrium issues for the first few months of my MM treatment. Wherever I stood up, I would have to pause for a moment to make sure I was ok. It felt like I might fall over if I didn't stop and wait for the feeling to pass.
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