@A MyMyelomaTeam Member
I’m not sure if I sent this to you elsewhere. Here is where you can get some straight answers.

This is a wonderful forum-where we’re sharing an unexpected journey! I’ve been encouraged and given great suggestions. Probably the best was to contact the Multiple Myeloma Research Foundation as you start on your journey. They have Patient Navigators that can address your individual concerns and provide the latest and greatest resources. The website is TheMMRF.org and/or call: Monday–Friday, 9 AM–7 PM ET at (Phone number can only be seen by the question and answer creators)
I called when my diagnosis was confirmed. My Navigator spent 90 unhurried and enriching minutes with me!

I’m on the same treatment plan but am receiving IV of Cytoxan. I was originally told treatment for multiple myeloma does not necessarily include chemo. Then I was hooked up to a chemo bag! If it is, it’s mild. I’m the same age as your dad, but fortunately, I have no other health issues. I am tolerating it well and it’s the only way I can get the bad out of my body. Right now, my body is not processing protein. I’m eating about 80 g a day, but not that much is going into my blood.
Praying for Wisdom as you move forward and help your dad. ✝️🙏🛐

Mentioned Users

A MyMyelo...

I was diagnosed April '23. I started taking all the drugs your father is on now. I was allergic to Velcade and switched to Kyprolis. The first few months were very painful. Your presence will greatly help your father, but you need to be with your husband and children also. I'm sorry you're in such a difficult situation.

Paola,
His Bio says “He has expertise in treating lung cancer, breast cancer, small intestine/colorectal cancer. He is not a MM Specialist. They only Specializes in MM and sometimes Leukemia.
Dr Robert Vescio and Dr. Hitomi Hosoya are the MM Specialists at Cedar Sinai. They are at the Samuel Oschin Cancer Center, 127 S. Vicente, Los Angeles. (Phone number can only be seen by the question and answer creators)

My first 2 Oncologists did not tell me they were not MM Specialists.
When they are not MM Specialists, they don’t know the tests to order, how to read them and what treatments are needed. They could not answer my questions. MM is too complicated. That’s why MM Specialists are separate from a general Oncologist. I’m glad I switched. I would have never found out I had progressed to Smoldering.
Paula🌹

Thank you so much Debbie. I am wishing you a new beginning after all of this. I cant believe so many people have this condition. I am praying for everyone! 🥰

Thank you so much Debbie. I am wishing yo