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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Quincy, IL

Low risk SMM IGG Kappa 22 months

July 11
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Answer Summary

Members discussed whether skeletal surveys can replace PET scans for monitoring low-risk smoldering multiple myeloma, with the community... Read more

Members discussed whether skeletal surveys can replace PET scans for monitoring low-risk smoldering multiple myeloma, with the community leaning strongly toward PET scans as the more effective option. Several members shared that PET scans detect active tumor cells and early bone damage far better than skeletal surveys, which require significant bone destruction before anything shows up, and many noted they had never been offered a PET scan despite years of monitoring. A recurring theme was encouragement to advocate with specialists, prepare for unexpected findings unrelated to myeloma, and stay hopeful while waiting for upcoming scan results.

A MyMyelomaTeam Member

PET scans or MRI's are what is recommended for myeloma patients. Skeletal surveys are considered old school.

July 11
A MyMyelomaTeam Member

Salli,
I think AI did a great job answering your question. It helped me understand why I had a PET scan and I am Smoldering. The PET was easier than a MRI. The contrast drink tasted good and there was not a lot to drink. I just had to wait after drinking it a little bit, but that’s better than being stuck in an MRI with all that noise. I was in a cushy chair!💕
Paula🌹

July 11
A MyMyelomaTeam Member

They intravenously use the dye in my facility.
I will ask about the contrast drink
Thank you so much 💓

July 11 (edited)
A MyMyelomaTeam Member

I'm getting a PET scan in November

July 19
A MyMyelomaTeam Member

Hi Salli did you have your PET scan yet.How did it go. I had the sketal xray when I was first diagnosis but since then I have had 2 PET scans every 2 years.

July 24

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