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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Sheboygan, WI
July 7
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People With Myeloma Face Stress Due to Delayed Treatments Read Article...
A MyMyelomaTeam Member

As a mother of a Doctor who starts her first day on August 1st, after finishing Residency, I will tell you the financial burden is real. We helped, but she will have debt that is more than the cost of most homes. She also worked in a hospital ER for 4 years before starting. The stress and work is incredible. I’m so proud she persevered. She wants to make a difference.
Imagine after going through years of Medical School, then 3 years of Residency, then having to do 2-3 more years to be an Oncologist. It’s practically a lifetime and the cost is enormous! AI says becoming an Oncologist takes 12-15 years of post high school education and training.
Paula🌹

July 8 (edited)
A MyMyelomaTeam Member

I think that somehow it's partially related to Obama care. You can keep your insurance, you can keep your Dr. You can stay with your facility.

There's hardly any independent Drs anymore. Seems they're all employees now.

Around here Drs have been forced to become part of conglomerates, hospitals have been bought out, my favorite physical therapist was taken over.

Something has changed and it doesn't seem to be for the better.

I know of a family. Dr and lawyer. The Dr was a stay at home Dad because she made more money and it wasn't worth it for him to work.

I just don't think there's enough money in medicine to justify people going through all it takes to be in the medical field.
I heard they can make more with an Only Fans page.

Even the top nurses are treated poorly.
Phlebotomists are treated terribly. Skilled Phlebotomists are a God send.

At our small local facility a skilled blood sucker quit to be a CNA - for better pay.

I have been blessed with mostly great blood suckers. Not so much with the IV starters. While mostly good I've had several that struggled - I've been told by several that I'm an easy stick.

I complained at one facility after a swing and a miss, and after watching the same 2 girls struggle with every single patient. Sticking and digging every time.

I was told that not everybody has the same skill level. Like that was supposed to excuse the situation.
I said, "Don't you think it would be better to give them something else to do and get those higher skilled people to do the sticks?
You guys need to up your game."
The person I was talking to was very insulted.

I don't care.

This was at that facilities main infusion center. Where every single patient gets stuck.

I've been stuck over a thousand times. I know a good sticker when I get one and see no reason why good stickers aren't better compensated.

I see it as a complete disregard for us. The patients.

Out of the last 12 or so IV starts, the same 2 people had issues every time. I had 3 others that had issues. The rest went incredibly easy and I was even told, I was an easy stick, a couple of times.

July 8
A MyMyelomaTeam Member

I think a lot has to do with what area of specialty young residents are choosing to enter. It's well known that there is a shortage of GP/PCP doctors. As for those entering the oncology field, I wonder if because our situation is so rare and incurable, many choose to practice other cancers where the research is better funded and the success rate of complete remission has a higher percentage.

July 7
MyMyelomaTeam

It's a real concern, and you're not alone in feeling it. While the healthcare system has its challenges, there are some practical steps that can help you get the most out of your care as someone living with myeloma.

Here are some ways to advocate for yourself and make the most of limited doctor time:

- Keep a running list Show Full Answer

It's a real concern, and you're not alone in feeling it. While the healthcare system has its challenges, there are some practical steps that can help you get the most out of your care as someone living with myeloma.

Here are some ways to advocate for yourself and make the most of limited doctor time:

- Keep a running list of questions in a notebook or on your phone, so you're ready when you do get appointment time
- Organize your medical paperwork in one place — a binder, drawer, or folder — so you can quickly reference important information
- Use your calendar to stay on top of appointments and avoid missed visits
- Be upfront about costs and coverage — if a recommended treatment isn't covered, ask about negotiating fees or alternatives before services are performed
- Know your insurance network to avoid unexpected out-of-pocket costs

Being well-prepared helps doctors help you more efficiently, which is good for everyone involved. Communities like MyMyelomaTeam can also be a valuable resource — connecting with others who understand what you're going through can help fill in the gaps between doctor visits. You're not in this alone! 💙

July 7

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