My taste got messed up after my transplant. I just had to experiment until I found something I could tolerate. They did a clinical trial to use steriod mouthwash for taste alterations with bispecifics. They didnt help. It does eventually get better on it's on. Maybe a dietitian can give you some pointers. You don't want to lose to much weigh. 🥰
July 3
Taste changes are a really common experience for people with myeloma — so you're definitely not alone in this! Many MyMyelomaTeam members describe a metallic taste, often nicknamed "metal mouth," which can make eating feel like a chore.
There are a few things that can cause taste changes:
- Chemotherapy can directly Show Full Answer
Taste changes are a really common experience for people with myeloma — so you're definitely not alone in this! Many MyMyelomaTeam members describe a metallic taste, often nicknamed "metal mouth," which can make eating feel like a chore.
There are a few things that can cause taste changes:
- Chemotherapy can directly affect how food tastes
- Oral thrush (a yeast overgrowth) can cause an unpleasant taste and discomfort — this can be triggered by steroids or stem cell transplants suppressing the immune system
- Mouth sores or dry mouth from treatment can also interfere with taste Here are some tips that may help:
- Tell your care team — they can check for oral thrush, which is treatable
- Try cold or room-temperature foods, as they tend to have a milder taste
- Experiment with flavors — some people find tart or sweet foods cut through the metallic taste
- Stay hydrated, as dry mouth can make taste changes worse
- Use plastic utensils if metal ones seem to amplify the metallic taste
It's always worth looping in your doctor before making big changes, just to rule out any treatable causes. Taste changes can improve over time, so hang in there! 😊
July 3
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