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My 16 week induction treatment was valcad Dara and steroid and 86% of the burden is gone. I didn’t make a CR and that worries me. I start maintenance July 22 nd. same treatment but only one time a month in stead of once a week.
Dolores, I haven't taken anything related to multiple myeloma since 2008. As you may know, it robbed me of both knees and 6" of spine; I know the fickle finger of fate decided I, and many others have been released from this disease. I'm confident it won't come back, but I still do annual bloodwork.
My insurer and health provider are one: Kaiser Permanente. There is no profit in keeping me on chemo or "maintenance." If I had another provider, I'd make sure to learn what my bloodwork results showed every time. If there is no sign of MM, I'd consider dropping chemo. Health care is a 'for-profit business.'
Trust but verify.
Was my response to induction while being high risk very topical?
First, an 86% reduction in myeloma burden after induction is a meaningful and encouraging response — that's a significant amount of disease cleared. Not reaching a complete remission (CR) after induction is actually quite common, and it doesn't close the door on deeper responses down the road.
Maintenance therapy plays an Show Full Answer
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