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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have been treated by the VA since my MM came from Agent Orange during the Vietnam war. I have no difficulty with the VA.

A MyMyelomaTeam Member asked a question 💭
Eden Prairie, MN

I have been getting chemo every month for the last 22 months. I get the routine of Zometa every month thru an IV and Daratumumab Hyaluronidase by infusion every month. I did have radiation treatment early and unfortunately, because of the intensity, I can not do that again. I also get regular Pet Scans. I did get radiation treatment thru community care as well as the Pet Scan. I also receive dental every quarter - quite important with Zometa. I also go to the VA eye clinic, as required… read more

June 19
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A MyMyelomaTeam Member

Thanks for the reply and stay healthy

August 4
MyMyelomaTeam

First, thank you for your service — and it sounds like you've built a really solid, well-managed care routine with the VA. That's not something everyone achieves, so that's genuinely impressive.

Regarding clinical trials — yes, continuing to explore them is a smart approach, even when current treatment is working well Show Full Answer

First, thank you for your service — and it sounds like you've built a really solid, well-managed care routine with the VA. That's not something everyone achieves, so that's genuinely impressive.

Regarding clinical trials — yes, continuing to explore them is a smart approach, even when current treatment is working well. Here's why they're worth keeping on your radar:

- Clinical trials can offer access to newer, potentially more effective therapies
- They may provide additional treatment options if your current regimen ever stops responding
- Costs are typically covered by trial sponsors
- You receive enhanced monitoring and care from specialists on the cutting edge of myeloma treatment One important consideration — since you're on Daratumumab Hyaluronidase long-term, any clinical trial would need to be carefully evaluated alongside your existing treatment plan. Always run any trial options by your oncology team first.

A good tip shared by a MyMyelomaTeam member: always ask your doctor "what's on the horizon?" at every visit. Staying informed about emerging treatments means you're never caught off guard if your current plan needs adjusting.

The National Cancer Institute's website is a reliable place to browse active myeloma trials, alongside conversations with your VA oncologist.

June 19

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