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A MyMyelomaTeam Member asked a question 💭
New York, NY

I have always been somewhat of an insomniac- but I know that I have to get restorative sleep now with MM in the mix- I have a routine that is working for me, but since I’m not a doctor, I not recommending it- just sharing-
About two hours before sleep time I take 3 benadryl and 1 CBD gummy(750 mg) . ( Perfectly legal where I live). It works like a charm- 8 hours a night and no hangover in the morning- I sleep better now than I did before MM- sigh.. it’s the little things! And since it’s only… read more

March 4
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Answer Summary

Members shared a wide range of sleep strategies for managing insomnia with multiple myeloma, from Benadryl and CBD gummies to Trazodone,... Read more

Members shared a wide range of sleep strategies for managing insomnia with multiple myeloma, from Benadryl and CBD gummies to Trazodone, melatonin, Tylenol PM, and THC products like Rick Simpson oil brownies. Several members emphasized practical lifestyle adjustments including avoiding caffeine after noon, working out early in the day, limiting screen time before bed, and trying supplements like magnesium and passion flower, with one member cautioning that long-term Benadryl use may affect cognition. A recurring theme was the frustration of disrupted sleep, especially on steroid treatment nights, and the relief of finding personalized solutions that provide restorative rest without morning grogginess or reliance on stronger medications like Ambien.

A MyMyelomaTeam Member

I use a sleep gummy from MEDTERRA and its great Using benadryl can cause long term issues with cognition so be aware. Try magnesium and calcium at night and passion flower. Avoid TV and screen time 1 hour before bed

March 7
A MyMyelomaTeam Member

I take Tylenol pm more than I should. I tried melatonin, but I got a severe headache. I also bought some Unison. It did not work as well as Tylenol pm 😒

March 7
A MyMyelomaTeam Member

I take Trazodone for sleep. Trazodone was initially intended as an antidepressant. Turns out it was a lousy antidepressant, but a great sleeping pill. Non-habit forming. Unfortunately, it does nothing for those nights after treatment when you have taken the Decadron.

March 6
A MyMyelomaTeam Member

I make my own Rick Simpson oil brownies. Rick Simpson oil is made from the flowers of the cannabis plant. RSO is potent because it is a full spectrum cannabis extract with high levels of THC. One teaspoon has 230 mg of THC and 400 mg of CBD. The CBD needs to be almost double the THC to offset the 'high" of the THC. One teaspoon is added to the normal oil that is mixed into a batch of brownies when you bake them. I eat one small brownie early in the evening, around
6:30. Then a coupIe of hrs later, I eat 1 CBD gummy called Fast asleep by Wana Optimals, which contains 10 mg of CBD and I sleep very soundly every night . There is no hungover feeling or drowsiness the next day. For me, it works like a charm. When I wake up to go to the bathroom, I fall right back to sleep.

March 7
A MyMyelomaTeam Member

Well, I have a totally different approach not very scientific, but works for me. Working out early in the day help. But when I happen to get a bad night of sleep, (4 hours or less I will drink a half a dosage of Nyquil the next night and it puts me right out. I do take Melatonin occasionally but that is hit and miss maybe a 50% success rate. No drinking coffee after 12 is a must for me too.

March 6

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A MyMyelomaTeam Member asked a question 💭
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what

A MyMyelomaTeam Member asked a question 💭
New York, NY

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