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Diagnosed with Myeloma, many of us look at food differently Some eat cleaner
Some struggle with appetite during treatment.
Some deal with steroid hunger.
Some have nausea, taste changes, or diarrhea.
There’s no “perfect” myeloma diet
For me, I’ve learned
Protein matters more than I thought. Hydration is non-negotiable
Sugar spikes and steroids can be tricky
Small frequent meals help on low-energy days
We may not control the diagnosis… but we can still… read more
Answer Summary
Members shared how myeloma profoundly changed their relationship with food, with many adopting cleaner diets that prioritize protein,... Read more
No alcohol, no coffee. No cold cuts, no bacon, no sausage. First thing after waking: two big glasses of excellent NYC tap water. Then at least three to four different fruits. Followed by either Greek yogurt, steel cut oats, farina, hard boiled eggs, no sugar added peanut butter/banana on whole grain bread etc.
Chicken, fish, lentils, split peas, barley. Occasional steak, occasional pork chop. Spinach, escarole, broccoli, sweet potatoes, broccoli rabe, string beans etc. Usually steamed. Potatoes in the air fryer. Some stuff sauted in olive oil.
Hey, I'm trying! Buon appetito.
I used to really like brownies, and ice cream, and chocolate chip cookies. Now I'd rather have a tuna sandwich or a salad, or hummus on celery/pita chips...etc. I've switched to salty mor than sweet, I guess......oh, and dates. I didn't like them before, and cottage cheese with various fruits. I'm glad my taste has changed. I still like some sweets though.
I cut out red meat entirely. We now use a temperature probe to cook everything to at least 165° to kill any bacteria, and I make sure I drink a lot of fluids, mostly filtered water. I also try to limit the amount of sugar I take in.
LynPatterson, your perseverance is inspiring. Every small effort counts, and staying active and supported is so important. May God give you continued strength and blessings in your healing journey. Keep smiling, you are doing great!”
This was happened to me after ASCT I went through the same challenges. little by little my appetite and strength are returning. Keep going, every step counts! 💛”
🙏
Praise to the Lord •
Just sharing
Small consistent steps matter — even forcing yourself to eat cereal, fruit, or a smoothie counts. Every bite is part of healing.
• Support systems help — having someone like her husband preparing smoothies makes a big difference.
• Celebrate progress — semi-remission and walking most days are huge victories!
• Everyone’s journey is different — no need to compare; each body, each recovery, is unique.
Thank you
Moh
@A MyMyelomaTeam Member: Who knew that radiation not only grows back hair, but makes one resemble a cute poodle! 😉
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