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A MyMyelomaTeam Member asked a question 💭
Monticello, IA
February 17
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Answer Summary

Members shared their experiences with hand cramps in multiple myeloma, describing frustrating symptoms ranging from cramping while typing and... Read more

Members shared their experiences with hand cramps in multiple myeloma, describing frustrating symptoms ranging from cramping while typing and writing to difficulty holding books. Several members found relief through magnesium supplementation (especially magnesium glycinate), staying well-hydrated, gentle stretching, warm compresses, and topical pain relief gels, while others noted the importance of monitoring electrolyte levels like potassium and calcium that can be affected by myeloma treatments. A recurring theme was adapting daily activities like writing Christmas cards or journaling to accommodate these limitations, with members encouraging patience and persistence while acknowledging that small improvements can happen over time with proper care and faith.

A MyMyelomaTeam Member

Hi

I’ve personally experienced this since my transplant surgery. It comes and goes. At times it was very frustrating because no matter what I tried, it felt the same.

I was on Gabapentin 400 mg and tried different pain medications. Now, nearly three years later, it has slowly improved, and I can manage it better. I still take Pregabalin 200 mg before sleep, as recommended by my doctor.

I’ve also tried massage therapy, cupping, and acupuncture — doing whatever I could to ease the discomfort.

“Most importantly, I never stopped praying and asking the Lord to give me strength, courage, and resilience to overcome this challenge. And truly, He has blessed me with the endurance to keep going.”

Low magnesium, potassium, or calcium levels can also cause muscle cramps. Myeloma itself — and its treatments — can shift these levels, so it’s important to monitor them.

Hydration

Water is essential. I try to drink at least 1.5 litres a day.
Sometimes I alternate with warm lime and honey, or ginger and honey — simple remedies, but comforting.

What may help:Gentle daily hand stretchingWarm compress or soaking hands in warm waterStaying well hydratedChecking magnesium levels with your doctor

If cramps are:Increasing in frequency
Painful enough to wake you
Causing hand weakness

It’s worth mentioning it to your oncology team so they can check labs or adjust medication if needed.

You are definitely not alone in this. Many describe it the same way — annoying, unpredictable, and discouraging at times.

But improvement can happen slowly. With patience, proper care, faith, and resilience, we keep moving forward.

Stay strong. We walk this journey together. 💛

Moh🌿🙏

February 17
A MyMyelomaTeam Member

It's hard to read a book when my hands cramp often. I have been taking Magnesium like Larry2, and that helps. I also rub XtraCare Ice Cold pain relieving gel on my hands and that seems to free them up. 👨‍✈️

February 18
A MyMyelomaTeam Member

Hi Leisa,
I had terrible cramping of hands, feet and legs before I was diagnosed with MGUS. I started taking supplements and the cramps went away. I also avoid salty foods, caffeine and carbonation which all take calcium out of the muscles and bones. I like MRM Bone Maximizer III (1200-1400 mg daily). It has Calcium, magnesium, D3 & K2, but I take extra D3 and K2 with vitamin C, E complex and A. No more cramps. No more constipation. I avoid beef and rice because of that. I don’t like taking pills so I take 2 spoons full of yogurt and strawberries and opened the vitamin capsules and mix them in.
Paula🌹

February 17
A MyMyelomaTeam Member

I started sending cards; at least they can stick them in the tree or mantle etc. I tried ecards;many times they aren't picked up,so technically they are...belated

February 20
A MyMyelomaTeam Member

I stopped writing individual Christmas cards. This last Christmas everyone got an email that I copied and pasted.

February 20

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