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A MyMyelomaTeam Member asked a question πŸ’­
Hiram, GA
January 22
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A MyMyelomaTeam Member

My harvest was mid November- shots Friday- Monday and two days of collecting- first day was six hours, second day was four- 6.6 million stem cells collected. Harvest was easy- chest port was a little wonky but easy in/out. Brought snacks/lunch and a book.

January 22 (edited)
A MyMyelomaTeam Member

My transplant isn't scheduled yet... probably late March- told I'll be on a hospital diet- will have a mini fridge in room to bring any snacks/drinks I would like. Transplant floor has 35 rooms all private- each room has bed, couch, few chairs and private bathroom/shower. Each room has their own filtration system and they say it's a bit chilly... compy clothes, non slip shoes and blankets!

I have also heard the one dose chemo makes appetite non existent (everyone is different) πŸ€žπŸ™ was told chemo kicks in about day four of stay and hair loss starts second week. Nurses will shave my head before I start loosing.

Wishing you all the best ((hugs)) on this transplant journey!! I think of it as an operation or I get anxiety! 🫀

January 22 (edited)
A MyMyelomaTeam Member

Firstly, after my SCT/BMT I had zero appetite, the dose of melphalan suppressed any desire to eat. I ended up drinking Ensure or Boost protein shakes to put something in my stomach. That lasted for about 30 days post-sct/bmt. I gradually was able to start eating normal food. I bought canned lentils, beans. Frozen peas, spinach and made various recipes for about another 2 months. I went from 145lbs. to 130lbs. within the first 45 days. It took me over a year to get back to 145. I did a lot of physical exercise and ate a lot of chili, chicken cutlets, split pea soup, hummus, yogurt smoothies etc.
Don't get discouraged about a lack of appetite and limited choices to eat. Eventually you'll get back to some semblance of normalcy.
P.S. No fried foods and an occasional glass of wine.

January 22
A MyMyelomaTeam Member

I am schedule for End of February harvest March 10th is Chemo Day , March 12 stem cells

January 22
MyMyelomaTeam

What foods should you eat during a stem cell transplant (SCT)?

During an SCT, you'll typically be placed on an antibacterial diet to protect you while your immune system is compromised. This diet includes:

* Canned fruits and vegetables (no fresh produce unless it has a hard outer skin that can be washed thoroughly, like Show Full Answer

What foods should you eat during a stem cell transplant (SCT)?

During an SCT, you'll typically be placed on an antibacterial diet to protect you while your immune system is compromised. This diet includes:

* Canned fruits and vegetables (no fresh produce unless it has a hard outer skin that can be washed thoroughly, like bananas or melons)
* Well-cooked meat (cooked until extra well done)
* No fast food or restaurant food until your counts recover

It's important to keep eating even when you don't feel like it, as proper nutrition helps build up your blood counts and strength. Many people experience nausea and diarrhea during this time, so don't hesitate to ask for anti-nausea and anti-diarrhea medications.

A MyMyelomaTeam member shared that their specialist recommended eating high-fiber cereal with digestive probiotics, which really helped with diarrhea. Try to focus on high-calorie, nutrient-dense foods when possible to maintain your strength.

Your medical team will let you know when your counts are high enough to return to a normal diet and when it's safe to eat fresh foods and restaurant meals again.

January 22

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