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I work several jobs and am not particularly tired. Just get rest whenever you can and enjoy the days when you do absolutely nothing!! Eat a healthy diet and take your Vitamin D and maybe a multi vitamin. I do take small naps whenever I can.
Yes, we could start a club if we had the energy🤣. I'm 9 years in. I still get so tired. I've got a cold sinus infection which makes me more tired. So the IVIG I'm getting might not be doing it's job. Plus, I got a big old cold sore, so I'm calling to see if I need to up my dose of Valtrex. I've had shingles before and I sure don't want them again. Anyway, it's not just you. Big hugs to you.🥰 Walking and eating right does help. I usually restrict all sugar, but being the Holidays, I have eaten some. I don't think surgery food help my immune system at all.
Hi Clara - I sm 8 years post sct. Still on my initial response, taking 5mg revlimid, IVIG monthly and Zometa quarterly. I do have fatigue, some days more than others. This disease is complex as are the drugs we take. I have been told that Revlimid has an accumulative effect over the years. The other side effects of lower Gi issues, (lately) a lot of cramps and muscle spasms, disrupted sleep, a bit of so-called chemo fog, etc. , I think, also contribute to fatigue issues. I stay very active and try to ignore it but sometimes it catches up. I guess this is a small price to pay compared to the issues of so many others. Happy Holidays!
Absolutely, Yea ! I’m also in remission but feel fatigued every single day. My life and energy levels are not the same. It’s my new normal that I’m trying to accommodate.
Are you experiencing fatigue even while in remission from myeloma?
Yes, fatigue can definitely linger even during remission. A MyMyelomaTeam member shared that they've been in remission for 17 years and still experienced fatigue during their journey. This is a common experience that many people with myeloma face.
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