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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Lake Charles, LA
November 27, 2025
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A MyMyelomaTeam Member

Hospice is a last resort to the grave. You would have to be badly off to choose that option for sure.
Car T is a chance of a longer remission without taking so many chemo drugs that hurt your organs but even Car T is dangerous cause a man who had it died 8 months later or your brain could be affected by it.
So all in all it’s a gamble no matter what do I guess take path that is least risky.

November 27, 2025
A MyMyelomaTeam Member

I think the preparation for a CAR T procedure is the tough part.

And yes, once discharged from the hospital, usually after one week assuming all went well, it is required the patient be close to the medical facility where they had the CAR T for about 3 weeks for out-patient monitoring visits.

November 27, 2025
A MyMyelomaTeam Member

There are grants out there that pay for revlamide!
I have Medicare and blue cross blue shield and oncologist said grant paid for revlamide. Thank God!!!!
I’ll say prayers for you!!!!

November 29, 2025
A MyMyelomaTeam Member

Very true Angie, some will.choose longevity over quality of life. My brother was one of those, he had many loved ones he did not want to leave behind. He had a long term disease with much suffering, guess you also get used to it after a while. I live alone and probably would not be missed if I am gone, so quality of life is my priority.

November 28, 2025

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