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A MyMyelomaTeam Member asked a question 💭
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what

My doctor did told me that I will not be in remission because of my high risk Multiple Myeloma aggressive type.And I will be on maintenance for the rest of my life. I am taking Linalidomide for 2 days 1 capsule and no intervals.
Injection for valcade every two weeks and Zometa every two months
Any members have the same taking of the medication as me

November 18, 2025
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A MyMyelomaTeam Member

I’m the citizen of my country and the Govt are taking care of the Healthcare issue, because we consider the Senior Citizens over 63yrs The govt subsidies 80 percent of the cost and patient paid 20 percent from our CPF fund that is from our monthly income 18 percent
Savings and Govt add 20 percent.That is why l go to public hospital, if you go to private hospital you got to pay for your own bills.
Been working for 35 yrs now retired
For my doctor who takes care of me he is Adj Asst Professor and he specialised in Acute Leukaemia Multiple Myeloma and Myelodysplastis Syndrome (MDS)
And head of the Heamotology Dept
Senior Consultant .
I think he is qualified for the position
And my Stem Cell Treatment sho is also senior Consultant
Adj Asst Professor specialties in
Stem Cells Transplant
Cells therapy
Heamotology
Malignancies Transfusions Medicine
And all the hospitals doctors are choose by Health Minister and Singapore is one of the most advanced
In healthcare system
Thank you
ColleenBrown
🙏🤦‍♂️

November 19, 2025
A MyMyelomaTeam Member

greetings from Alaska, I have been diagnosed with high risk Multiple myeloma will always be on some form of treatment. So I resigned myself it is what it is and I’m not killing any of my healthy cells by worrying about it. I’m always going to be on treatment. stay healthy eat well exercise meditate take care of the things that you have control over release everything else. I wish you well and happy Thanksgiving.

November 27, 2025
A MyMyelomaTeam Member

Your treatment sounds very similar to mine. It seems like you are getting the best possible treatment.. I go to City of Hope in Southern California.

November 20, 2025
A MyMyelomaTeam Member

Myeloma treatment options

Multiple myeloma treatment options are diverse and depend on factors like the type of myeloma, stage of disease, and individual patient needs. Here are some common treatments:

Medications:

- Chemotherapy: Kills cancer cells or slows their growth. Examples include:
- Bendamustine (Treanda)
- Cyclophosphamide (Cytoxan)
- Doxorubicin (Adriamycin)
- Melphalan (Alkeran, Evomela)
- Immunomodulators: Boosts immune system's ability to fight cancer cells. Examples include:
- Lenalidomide (Revlimid)
- Pomalidomide (Pomalyst)
- Thalidomide (Thalomid)
- Monoclonal Antibodies: Targets specific proteins on myeloma cells. Examples include:
- Daratumumab (Darzalex)
- Elotuzumab (Empliciti)
- Isatuximab (Sarclisa)
- Proteasome Inhibitors: Prevents cancer cells from growing. Examples include:
- Bortezomib (Velcade)
- Carfilzomib (Kyprolis)
- Ixazomib (Ninlaro)

Therapies:

- CAR T-Cell Therapy: Modifies T cells to attack cancer cells. Examples include Ciltacabtagene autoleucel (Carvykti) and Elranatamab.
- Autologous Stem Cell Transplantation: Replaces damaged bone marrow with healthy stem cells.
- Maintenance Therapy: Long-term treatment to keep myeloma in remission. Examples include Daratumumab with lenalidomide ¹ ² ³.

Other Treatments:

- Corticosteroids: Reduces nausea and vomiting during treatment. Examples include dexamethasone and prednisone.
- Bisphosphonates: Strengthens bones.
- Radiation Therapy: Relieves bone pain.
- Surgery: Stabilizes broken bones or vertebrae ³.

Treatment plans often involve combining these options. For transplant-eligible patients, frontline therapy typically consists of induction, autologous stem cell transplant, and maintenance ².

November 19, 2025
A MyMyelomaTeam Member

I was diagnosed with high risk stage 3 oligosectory lgG lambda myeloma in Dec 2020. I had an SCT 8/17/21. I am currently taking Lenolidomide 5mg 2 wks on 2 weeks off and Velcade every 2 weeks plus Zometa every 3 months. I get a pet scan every 6 months and see my specialist at Dana Farber once a year in June. I'm doing well. I work part time. I exercise. I drink a lot of water but have no special diet. My thought is if I relapse hopefully I'll be a candidate for the Car T Cell Therapy. I feel fortunate that the treatment is still working and that I'm still here.

November 25, 2025

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