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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Fairbanks, AK
September 6, 2025
 · 
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A MyMyelomaTeam Member

Getting a second opinion is key. Confidant doctors welcome second opinions. My M Spike is 0.6 but my bad plasma is 10%. I am Smoldering.
Paula🌹

September 10, 2025
A MyMyelomaTeam Member

My M-spike was 1.4 in December and 1.7 in June

September 8, 2025
A MyMyelomaTeam Member

Unfortunately, that is too simplistic. Your Hematologist/Oncologist should be a MM Specialist, if not ask for a second opinion. My calcium levels were too high when I had MGUS, but I had no other issues. You need a bone marrow biopsy to see what type you have. I have translocation (14:16) with 16q deletion, Monosomy 13 and +5. You need to know how high your M Spike is. Then you look at “CRAB” C for Calcium, R for renal (kidneys) A for Anemia and B for bones. My first 2 Oncologists did not understand MM. When I started to know more than they did, I got worried and joined this group. I was then told how important it was to have a MM Specialist.
Paula🌹

September 7, 2025
A MyMyelomaTeam Member

Not being misled .MM typically had high calcium levels.

September 7, 2025
A MyMyelomaTeam Member

Interesting, I always feel I was wrongly diagnosed with MM in March '24 asymptomatic with low calcium levels to date. I take calcium supplements because my calcium levels are so low. I will be changing to Stanford next January because I am not sure I am getting the best treatment for my condition.

September 6, 2025

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