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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Collingswood, NJ
July 14, 2025
 · 
Reactions
A MyMyelomaTeam Member

My condolences on your loss. I had the therapy and have gone through the "side effect" time. Luckily I was in the best hospital possible, Hospital of the University of Pennsylvania. Great staff and Dr's. Feeling hopeful for long term results.

July 15, 2025
A MyMyelomaTeam Member

My wife died from CAR-T. The patient free survival rates are not that spectacular. Look them up. We requested radiation but were denied. Research now is suggesting radiation therapy before and after CAR-T. We made the mistake of not having a Stem-Cell Transplant early on. My best to you. Be vigilant and watch your numbers.

July 15, 2025
MyMyelomaTeam

CAR-T cell therapy has shown promising results for many myeloma patients. Clinical studies found that 3 out of 4 people experienced reduced cancer signs, and 1 in 3 achieved complete response where all signs of cancer disappeared. For those with complete response, about 2/3 maintained remission for at least a year. Most Show Full Answer

CAR-T cell therapy has shown promising results for many myeloma patients. Clinical studies found that 3 out of 4 people experienced reduced cancer signs, and 1 in 3 achieved complete response where all signs of cancer disappeared. For those with complete response, about 2/3 maintained remission for at least a year. Most people experience some side effects during treatment. Common ones include:
- Tiredness
- Fever and chills
- Muscle aches
- Headache
- Nausea
- Diarrhea
- Loss of appetite
- Cough

Some patients may experience cytokine release syndrome (CRS), which can cause flu-like symptoms. Your healthcare team is specially trained to manage these side effects and has treatments available to help you through them. It's important to communicate openly with your healthcare team about any symptoms you experience. They can help determine which side effects need immediate attention and provide appropriate care to make you more comfortable during treatment.

July 14, 2025

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