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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Bhavnagar, Gujarat, India

As a result of lytic bone lesion in my spinel column because of MM, my height get reduced by 2 inches. Because of this situation I feel severe to moderate back pain. I also experience Kyphosis. Can any one suggest me how to reduce effect of Kyphosis?

May 19, 2025
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A MyMyelomaTeam Member

Keep in mind these bone building shots have a terrible impact on your jawbone and teeth called ONJ do the research on zometa, Xgeva and priola.
If you’re on them beware of any jaw pain and report immediately to doctor they will discontinue immediately

May 30, 2025
A MyMyelomaTeam Member

I had kyphoplasty in June 2024 for horrible lower back pain at mdanderson and it did not help
Pain has only gotten worse they claimed I have a perineural cyst or tarlov cyst in report but later said no it’s a pinched nerve at l4-l5 vertebrae so I went to dr. FEIGENBAUM a tarlov specialist he said sorry can’t help you once he found out I had multiple myeloma directed me to go to lake Charles neurosurgeons that don’t seem to be knowledgeable and only prescribe priola shots physical therapy and 24 hour back brace
My problem is getting worse can hardly walk I barely make it to bathroom before I pee everywhere can only stand for 15-20 minutes then have to lay flat on waterbed with heating pads and pillows after taking Tylenol for arthritis and acuplus roll on then pain backs off until I have to get up again.
Not sure if you have this god foresaken cyst but I can tell you it’s no fun!

May 29, 2025
MyMyelomaTeam

Kyphosis from myeloma occurs when bone lesions cause vertebrae to collapse, leading to spine curvature and pain. One of the main treatment options is kyphoplasty, a minimally invasive procedure where a balloon is used to restore height to collapsed vertebrae. The fractured bone is then reinforced with special bone cement to Show Full Answer

Kyphosis from myeloma occurs when bone lesions cause vertebrae to collapse, leading to spine curvature and pain. One of the main treatment options is kyphoplasty, a minimally invasive procedure where a balloon is used to restore height to collapsed vertebrae. The fractured bone is then reinforced with special bone cement to provide stability.

Your doctor may also recommend starting bone-building medications like bisphosphonates or denosumab to help prevent further bone problems and fractures. These medications can be started early, even at diagnosis, to protect bone health. For pain management, radiation therapy can be helpful in treating bone lesions and strengthening affected areas. A back brace may also help stabilize your spine and reduce pressure in specific spots. Your doctor can recommend appropriate pain medications, but be sure to consult with your oncology team before taking any over-the-counter pain relievers.

Some people find relief through complementary approaches like gentle exercise, medical massage, or yoga, but always check with your healthcare team before starting any new physical activity program.

May 19, 2025

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