Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

After fourteen months having been given 4 different chemotherapeutic meds I am still not in complete remission, though I've recently been told I'm in "very good partial remission." I've not only read about Car-T but I had a very close friend who did undergo this procedure. It did extend his life but it also gave him
leukemia as a side effect. I'm aware the potential for short term side effects can be quite harsh and that somewhere between 5-7% of patients may have long term side effects that… read more

April 9, 2025
 · 
Reactions
A MyMyelomaTeam Member

Perhaps you are thinking of Abecma, which is the only other car-t for MM and only has a potential remission of a year. Carvykti offers a potential three year remission which would be an advantage for me. At least that is my hope. I am feeling quite well these days so it is difficult to agree to a few months of harsh side effects.

April 12, 2025
A MyMyelomaTeam Member

Thanks and much appreciated!David 

April 12, 2025
A MyMyelomaTeam Member

I recently read that relapse happens on average around 8-12 months later. I’m not sure I would want to go through all that for such a short time. I was looking for the article to share with you, but I think you could find it on Patient Power.
Paula🌹

April 11, 2025
MyMyelomaTeam

CAR-T cell therapy is specifically designed for people with myeloma that is refractory (resistant to treatment) or has relapsed, which seems relevant to your situation. The treatment works by modifying your own T cells to better fight cancer cells, and it can be effective when other treatments haven't achieved complete Show Full Answer

CAR-T cell therapy is specifically designed for people with myeloma that is refractory (resistant to treatment) or has relapsed, which seems relevant to your situation. The treatment works by modifying your own T cells to better fight cancer cells, and it can be effective when other treatments haven't achieved complete remission. Your concerns about side effects are valid. The most common side effects include cytokine release syndrome (CRS), which can cause flu-like symptoms, and potential neurotoxicity. Other common side effects include fatigue, infections, muscle aches, diarrhea, nausea, swelling, fever, cough, headache, and loss of appetite. Because of these risks, treatment is only available at certified locations with specially trained healthcare providers who can manage complications. It's important to note that most side effects from CAR-T therapy are generally milder than those from stem cell transplants, and treatments are available to manage these side effects. However, given your previous experience with treatment complications, it's crucial to have a detailed discussion with your healthcare team about your specific risk factors and concerns before making a decision.

April 9, 2025

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭
West Monroe, LA