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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Ebensburg, PA
October 14, 2024
 · 
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A MyMyelomaTeam Member

Hi I am smoldering. I agree it is not asymtomatic at all. I have been dealing with leg pain for close to two years and the itching for about a year. So far no lesions or tumors. I am being tested again next month and think I will ask for another bone scan. My right leg is definitely not getting better and the pain is daily as is the itching.

October 25, 2024
A MyMyelomaTeam Member

Thank you! No, I’ll look for it.

October 14, 2024
A MyMyelomaTeam Member

I agree!! It’s such a weird space. The watch and wait approach. I have anxiety every two months when I get my blood work. I have been close to needing treatment a couple times. It messes with your head!

October 14, 2024
A MyMyelomaTeam Member

Hi Sally,
There are a lot of people with Smoldering MM who think it should be called cancer. I was told by one doctor that cancer is defined as uncontrolled growth. I guess since we have a low level, we are still defined as pre-cancerous. With my symptoms, it feels like cancer.
Paula🌹

October 14, 2024
A MyMyelomaTeam Member

@A MyMyelomaTeam Member,
The itching is probably from your kidneys. Drink lots of pure water with a slice of lemon. The leg pain could be from a plasmacytoma, but more likely from lack of Calcium. I’m taking 1200 MRM Bone Maximizer III, with extra D3, K2, vitamins A & E complex. It really helps.
Paula🌹

October 25, 2024

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