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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Barcelona

Btw, how do I know the risk (if I am high or low risk) of developing myeloma from MGUS or from smoldering myeloma?.
Question 2: I have myeloma cells but with MGUS and at the same time myelofibrosis. How do I know what is the main cancer, if it is myeloma or myelofibrosis?.
Thanks in advance

June 29, 2024
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Multiple Myeloma Types and Related Conditions Read Article...
A MyMyelomaTeam Member

I have smoldering M and Dr watched it for 3 years. I got the bone maro biopsy and finally got the treatment started BEFORE full blown MM because it's the only way to go according to my other 2 opinions. I've had 8 treatments which is 2 cycles and I feel so much better and my back has gone from horrible pain to tolerable because of the treatments. I can actually function well.
Talk to your Dr about options and ask every question you can write so you don't forget.
Good luck!

June 29, 2024
A MyMyelomaTeam Member

If a second opinion makes you feel better, you should get one.

November 7, 2024
A MyMyelomaTeam Member

Thanks. I will probably do.

November 8, 2024
A MyMyelomaTeam Member

Waiting on my blood work up when in in the 10th, see if my smoldering has turned into full MM. what are some good questions I should ask if it has. Should I get a second opinion? Thanks !

June 29, 2024

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