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For those who have had Car T Cell therapy. How did your (or your loved one) body respond/how did you feel after the procedure (side effects)

A MyMyelomaTeam Member asked a question 💭
Greensboro, NC

For those who have had Car T Cell therapy. How did your (or your loved one) body respond/how did you feel after the procedure (side effects), from infusion up to 8 weeks or so after? My loved one whom I am primary care giver for, will be going through this process soon and although everyone’s experience may differ we would like to know how others with MM experience has been.

I know someone with lymphoma whose side effects after the Car T has been pretty bad but I read that it can be worse for… read more

June 5, 2024
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MyMyelomaTeam

After undergoing CAR-T cell therapy for multiple myeloma, individuals may experience a range of side effects. Here are some common responses and side effects:

- Cytokine Release Syndrome (CRS): This is a common side effect where high levels of cytokines can cause flu-like symptoms such as fever, chills, breathing problems Show Full Answer

After undergoing CAR-T cell therapy for multiple myeloma, individuals may experience a range of side effects. Here are some common responses and side effects:

- Cytokine Release Syndrome (CRS): This is a common side effect where high levels of cytokines can cause flu-like symptoms such as fever, chills, breathing problems, and confusion. In most cases, CRS is mild, but it can be severe and life-threatening in rare instances.
- Neurotoxicity: Symptoms may include confusion, trouble speaking or listening, and stupor.
- Other Common Side Effects:
- Infections
- Muscle aches
- Diarrhea
- Nausea
- Swelling
- Fever
- Cough
- Headache
- Loss of appetite
- Tiredness

It's important to discuss potential side effects with your healthcare team to understand which symptoms may indicate more serious health problems.

June 5, 2024

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