Mary,
Are you drinking 64 oz of pure water? I have IgA Kappa and I heard it affects the kidneys and drinking water helps and avoiding sugar. My eGFR is just starting to go down and my Creatine is above normal.
posted May 9
My GFR was down to 27 at one point but now stays in the upper 50's. My oncologist was most concerned about my kidneys while I was in the process of being diagnosed. I have free light chain kappa which I was told is the most aggressive type on the kidneys.
posted May 8 (edited)
It sounds like you're going through a challenging time managing both multiple myeloma and stage 2 renal failure. Kidney issues are indeed common among individuals with multiple myeloma. Up to half of those with the condition experience problems with renal function, and about 10% may develop severe kidney failure requirin... read more
It sounds like you're going through a challenging time managing both multiple myeloma and stage 2 renal failure. Kidney issues are indeed common among individuals with multiple myeloma. Up to half of those with the condition experience problems with renal function, and about 10% may develop severe kidney failure requiring dialysis.
Here are a few points that might be helpful:
- **Monitoring and Management**: It's crucial to work closely with your healthcare team to monitor your kidney function regularly. Early intervention can help manage kidney issues effectively.
- **Treatment Options**: Depending on the specifics of your myeloma and kidney health, treatments might include medications like Velcade (bortezomib), Revlimid (lenalidomide), or a combination of drugs that can help manage both conditions without further harming your kidneys.
- **Hydration**: Staying well-hydrated is essential. Drinking about two to three liters of water per day can help maintain kidney function.
- **Community Support**: Engaging with communities like MyMyelomaTeam can provide support and practical advice from others who are in similar situations.
It's important to discuss any new symptoms or concerns with your oncologist or nephrologist, as they can tailor treatments and interventions to your specific needs.
posted May 8