Just got my second set of labs back after my SCT. The first (4 months after it) showed a monoclonal protein in the gamma region. My doc reminded me that this disease is never gone, it comes back. I just started back with dara and he assured me it wasn’t a false positive with no additional testing done. He reminded me my remission would be short b/c I’m high risk. Well, it didn’t show in my new labs. Still no M spike. I am so happy the relapse hasn’t started yet. I didn’t realize how worried I… read more
Can not say I dread seeing the results, but I am always a bit apprehensive.
@A MyMyelomaTeam Member Hi Archie, with you having this disease for several years I’m sure its taken its toll on you. I have to say I admire your perseverance! I think I’ve told you that before but the memory isn’t what it used to be. I’m starting my second year and have made some progress but some weeks are physically and mentally hard to get through. I’ve had one little thing after another since diagnosed with MM. it’s like my body is just starting to break down . Mentally I’m optimistic that there are many good days ahead so I keep on dealing with the ups and downs. Not that I can change things. My plan was to live to 100, but I didn’t realistically know what it felt like to be in pain most of the time. I sure have new found empathy for anyone in pain. I guess it’s good we can’t see into the future. I agree with you that I hope that as I get nearer to the end that’s it’s not painfully drawn out, until then I guess we just take one day at a time and try not to focus on what we can’t do but focus on what we can. Hope you have a good weekend! 👍
That’s great news! I think we all worry about how our tests are going to come back and if the myeloma is active again. Have a wonderful weekend!
I have learned recently that I MUST live it "One Day at a Time" (sometimes a day is actually a minute). For me this means that I do not worry about (and do not even think about) what is in the future. I just can't handle that anymore.
I do the work and leave the results up to God.
My Specialist tells me that it is unheard of for someone with my genetics to be in control as long as I have. I'm hoping we both beat the odds. I hate that I still stress over my labs.