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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Springfield, PA
April 23, 2024
 · 
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A MyMyelomaTeam Member

I take pomalyst 4mg. Been taking it for over year.

April 23, 2024
A MyMyelomaTeam Member

I started with 2 mg in April 2023. My kappa light chains begin increasing in March so we increase the mg to 3. The kappa number did go down but in May we noticed an increase. So we are watching the numbers, if they increase we will begin 4 mg. The leg spasms will occur if I miss a day of tonic water.

May 31, 2024
A MyMyelomaTeam Member

Hey Merri, would you and your doctors consider adding a different drug with Pomalyst? I take Pomalyst 2mg with Darzalex faspro. I have been lucky on this combination so far.

April 24, 2024
A MyMyelomaTeam Member

I started on 3mg. and went to 2 mg. my white counts are still low. Next week we are going to 1mg. Pomalsyt works with the light chains, but is rough on my white counts. I hoping 1mg. will be the answer.
I didn't have any side effects with the change in dosage.

April 23, 2024
A MyMyelomaTeam Member

I was always on 4mg of Pomalyst and never had any side effects.

April 23, 2024

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