Hello I am Titi,
I have taken Revlimid since June 2020. I don’t have lot of side effect. It is working. My doctor reduce the dose from 15mg to 10mg. So far no side effect. Every time I take the medication I drink a lot of water (500 ml).

Hi Elaine,
I have started my treatment on RVD for 8 months, no SCT, gradual improvement eliminated dexamethasone, gradual reductions in Velcade frequency and dosage and maintenance Revlimid after 2 years. My maintenance Revlimid was 21 days per cycle and 7 days off. I have been on Revlimid for 5 years and am in complete response for 3 years.
My experience with Revlimid has varied from repeats of side effects that I have adapted strategies to improve or reduce along with my healthcare team oncologist and oncology nurses, I have had gastrointestinal symptoms, fatigue, skin issues and some neuropathy. However neuropathy can be caused by Velcade, multiple myeloma and Revlimid so it is not the sole cause. My advice is to keep a journal of symptoms to discuss with your healthcare team on each appointment so that they can help you through. I gradually improved along my journey with diet and exercise. I had physical therapy to help move me forward in the process too. Any exercise that matches your physical capabilities is important. Walks are a good start, physical therapy next and a steady regimen of exercise helps. I hope this feedback helps.

Diagnosed on June 2020. Revlimid is not the only therapy I take.
I take Revlimid in combination with DARZALEX .
Every month I take Revlimid for 21 days (3 weeks) and 1 week off and DARZALEX injection once a month.

I had Smoldering since 2017 When my numbers remained high it was decided to start treament with Revlimid, Dexamethasone, Valcade and Daratumumbab.

Hi Titi, has Revlimid been your only therapy? When were you diagnosed with MM?