I Was First Diagnosed With Multiple Sclerosis Followed By Smouldering Myeloma So What Is The Connection? | MyMyelomaTeam

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I Was First Diagnosed With Multiple Sclerosis Followed By Smouldering Myeloma So What Is The Connection?
A MyMyelomaTeam Member asked a question 💭
posted March 21
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A MyMyelomaTeam Member

I was diagnosed seven years ago with smoldering myeloma. Didn't advise treatment until three years later when I had disc lessons. Been talking treatment for the last five years and told I would have to take treatment the rest o my life. I'm eighty years old now doing pretty good. Just got back from a two weeks cruise vacation. Hopefully this helps.

posted March 23
A MyMyelomaTeam Member

Neither do I, lucky I'm going on 4 years and still holding at SMM. I wonder what will happen if it changes to MM, what treatment will I have to do and etc. but I figured why worry now, that won't change anything. So I just go day by day, work around the house and etc, if it changes then I'll see what the MD wants me to do, and hopefully still don't worry.

posted March 28
A MyMyelomaTeam Member

I would give it a chance if I have to. I just don't know what to expect from it.

posted March 27
A MyMyelomaTeam Member

A lot of people on this website have MM and follow the MD treatments. Seen people on here going on 10 to 15 years with treatment. Give the MD a chance, if not for you then for your family. I hope you make the right decision, good luck and prayers.

posted March 25
A MyMyelomaTeam Member

I have had symptoms for years but I have been told to come back in 3 to 6 months so I might just disregard treatment altogether and either cure myself or slowly cease to exist.

posted March 24

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