Optimizing Your Outcome With MMRF Founder Kathy Giusti And Chief Mission Officer Anne Quinn Young | MyMyelomaTeam

Connect with others who understand.

sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Optimizing Your Outcome With MMRF Founder Kathy Giusti And Chief Mission Officer Anne Quinn Young
A MyMyelomaTeam Member asked a question ๐Ÿ’ญ

I found this to be very helpful, hope y'all do as well.

https://www.youtube.com/watch?v=vBrg1mXpn_U

posted February 21
โ€ข
View reactions
A MyMyelomaTeam Member

Paula I am going on 22years since being diagnosed and the average lifespan was 5years so like Cheryl said donโ€™t believe all the statistics because everyone is different.

posted March 1
A MyMyelomaTeam Member

@A MyMyelomaTeam Member Yes ma'am, lots of great resources out there as you listed. I also listed those in a previous post of mine. I just received this in my MMRF email today and thought I'd share. Plus I've been following MM and doing tons of research and reading since my brother was diagnosed in 2001. But I certainly don't want to overwhelm anyone, I just found it useful. ๐Ÿ•Š๏ธ๐Ÿซถ

posted February 21
A MyMyelomaTeam Member

Hi Cheryl,
There are many strategies to optimize multiple myeloma outcomes. This video offers several ideas for patients to consider. Some other successful strategies are to journal symptoms and experiences to discuss with your healthcare team, follow your labs via cancer treatment center applications, and education at MyMyelomaTeam, Healthtree and the Multiple Myeloma Research Foundation. There are webinars available on Healthtree and MMRF. Healthtree offers Healthtree University videos too. However, one can be overwhelmed with information, similar to drinking from a firehose full blast. Be patient and learn as best as you can.

Thanks for sharing Cheryl.

posted February 21 (edited)
A MyMyelomaTeam Member

I clicked on the "watch video" in the email. When the video popped up on YouTube, I just highlighted and copied the URL, then came back here and posted it to the Q&A. I hope that helps! ๐ŸŒž๐ŸŒป๐Ÿ•Š๏ธ

posted February 21
A MyMyelomaTeam Member

Thank you for your reply! You are a beautiful, kind soul and I appreciate you! May God continue to richly bless you!

posted March 1

Related content

View All
Iโ€™m 5 Years Post Stem Cell Transplant For The Multiple Myeloma. Has Anyone Experience Wierd Rare Health Events ?
A MyMyelomaTeam Member asked a question ๐Ÿ’ญ
Does Anyone Else Have Problems With Their Jaws, Etc? Sometimes When I Open My Mouth It Feels Like A Cracking Noise. Thanks.
A MyMyelomaTeam Member asked a question ๐Ÿ’ญ
Iโ€™m,on Darzalex Infusion Once A Month And Now My MM Is OUT Of Remission. I Was First Diagnosed In June 2023. The Doctor Put Me On Revlimd
A MyMyelomaTeam Member asked a question ๐Ÿ’ญ
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in