Hi Myrtho - Yes, Definitely - we can get back into remission.

I had treatment two years ago. Got to remission in 7 months, no SCT.
A dormant lesion became active this past summer - I had been off all MM Meds for a year. Started treatment Sept. 1 - back in remission after only 3 months of a much lessor dose and off all MM Meds again.

If we respond and get to remission, I believe we do better staying off MM Meds. Dr Costa (very big deal in MM community) has said exactly this. There's links to his Study and Video at my Story.

Recently, I read a PubMed Case Study that showed that DarzFasPro stopped working due to it suppressing CD38 of the MM. But by being off it for 6 months, it regained its ability to kill-off the MM. DarzFasPro is engineered to specifically kill-off cells that express CD38. All forms of MM express CD38. Sometimes, it's not tested for in our FISH Test, since its a given that it will always be there.

I've detailed all of this at my Story @A MyMyelomaTeam Member. I believe my new Plant Based Diet and Key Supplements made my Revlimid and Dex perform at a very accelerated level. During that time, I was also doing intermittent water fasting of 16 hours water and only an 8 hour window for my food for the day.

If it's been a while, get a new PET/CT to try and locate where the activity is coming from, such as a lesion or your marrow everywhere or an isolated region.

Mentioned Users

A MyMyelo...

It’s a supplement in capsule form.

I've heard about curcumin, how do you take it?

My last lab said my IgA was 599. I have Smoldering MM and no plans for treatment yet. I’m holding back bone pain by taking 1,000 mg of Calcium with MCHA and D3 & K2 for absorption. Curcumin helps with pain and inflammation too.

Hi Myrtho, yes you can get good disease control after a relapse. Get a good myeloma Specialist and follow their recommendations. Big hugs your way 💖