Diagnosed With Leukemia And Multiple Myeloma | MyMyelomaTeam

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Diagnosed With Leukemia And Multiple Myeloma
A MyMyelomaTeam Member asked a question 💭

Had SCT 2/22 and leukemia is in remission, however multiple myeloma is not. Doctors at John Hopkins are taking a wait and see attitude because they say the myeloma hasn’t changed. I’ve lost about 90lbs and have no energy most days. My spleen is enlarged and the doctor says that’s what’s causing the weight loss. My appearance to me looks extremely frail. Appetite is good and I’m taking in a lot of protein but still no weight gain. Doctor says that he’s going to talk to the myeloma team and… read more

posted January 27
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A MyMyelomaTeam Member

Hi Alan. Ask your doctor to check your blood sugar and thyroid as well. I pray your dr will take your concerns seriously and get to the root cause of your weight loss. Hugs

posted February 1
A MyMyelomaTeam Member

An enlarged spleen causes weight loss. It presses on the stomach and makes it hard to eat. Small more frequent meals might help💖

posted January 29
A MyMyelomaTeam Member

I would advise that you get to the root cause of the weight loss first. cancers can sap a lot of energy. Find a doctor who will look into your weight loss and underlying cause. Hugs for you today

posted January 29
A MyMyelomaTeam Member

Been talking to a nutritionist at VA on a monthly basis, but no one at John Hopkins.

posted January 28
A MyMyelomaTeam Member

Alan, did you talk to the dietitian at your center?

posted January 28

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