Hi Jay6
yes, peripheral neuropathy is a darned nuisance that one has to live through for the rest of one's life.
you surprise me that you say you are free of cancer - what sort of cancer is it that you have?
I have had a fair amount of treatment which has brought me into remission BUT the sweet little cells of Multiple Myeloma, although vastly reduced, are still evident in the symptoms [and blood results].
RandyAxtell2, your trick of keeping things light and comical re the pain in your feet is a great one.
I wish you could see me walking in all sorts of positions while enjoying my surrounds.
my experience has not been caused by any drugs - began long before I was diagnosed with Multiple Myeloma. the pain was often at the same time as cramps in toes, arch and calf.
soaking one's feet in warm-hot soapy water can be soothing - I imagine I'm sitting at the beach with gentle waves caressing my feet, or maybe that's the long hair of the mermaid I feel..
rarely I feel the same 'tinkering' with my nerves in many other places of my body. chin up
k4
So far I’ve been able to power through it. Sometimes I start moving forward by using my hips and hope my feet follow cause I’m not sure my legs are there. I’ve also called friends and family to look for my feet in their closets and houses cause I might of left them behind after visiting. I know the pain is serious sometimes and I’m just keeping it light for myself to keep going. Not trying to be offensive. Thank you!!
I also have neuropathy. Take gabupenten 2 tabs 3 times per day. Doesn’t take away but helps a lot. See my endocrinologist next week. He will probably want to increase but I take enough meds now and at this point can live with it. We will see
I take gabapentin for neuropathy. Helps a lot
Thanks for the suggestions. I’m coping. When I said I was cancer free I meant currently the blood tests, pet scans there is no evidence of multiple myeloma cells. I guess I’m in remission. I lost 25 pounds going through stem cell transplant. 165 - 140. I’m having difficulty gaining the weight back.
Jay