Yes Donnie. This is the new norm. You are SMM. I was full blown raging MM. IgG Kappa light chain with shoulder being eaten from the inside out. I was full time and so tired went to 4 hours. Had to sit down all the time. Easily winded. Now take 3 naps a day. I am shot to hell but I am happy it’s not getting worse. I can no longer do physical work. If you are younger than 66 you better go on long term disability now because you can’t get a dime after that. Once you start SS you’re screwed. Even my company wouldn’t give me disability and the state rejected me. Did I say I’m happy? I am. I really am. My 69 year old wife is still working. From 9 to 9. Thank goodness she’s out of the house during the day. lol. I think I was smoldering since high school when I was known as the Sominex Kid. Do you remember Sominex?

“Take Sominex tonight and sleep,
safe and restful sleep, sleep, sleep”

Prepare yourself to make the mental as well as physical adjustment. Either the disease or the treatment will make you tired, sleepy and winded.

I would see if you can get in sooner given how you are feeling.

Once a year, can probably call and get them to see me anytime

2019 - wow! Do you have to wait until January to be seen? Are you seen every 3 months, every 6 months or once a year?

Diagnosed in 2019 next appointment is January