Diagnosed in 2003. Started with Revlimid. When it stopped working in was diagnosed 2003.it was watch and wait. Doc put me on Revlimid. Took for about 10 years and it stopped working. 2020 went on infusion of daratubamab with shot of velcade. Then was on Dara in shot form for maintenance. This past spring started carfilzomib infusion with Dara in shot form. Numbers are going up again and Pomalidomide is next step. Have appt with oncologist this week to discuss new regime. I understand this new… read more
Thanks for answering. In the meantime my oncologist had me see the doctor in the transplant dept. Although am not a candidate for stem cell or Cart T procedures he has started me on teclistamab (Tecvayli) this drug is a bispecific and attaches itself to stem cells and myeloma cells and somehow destroys the cancer cells. I believe that is how it works. I started receiving the drug 10 days ago in a 3 step up process. It has some nasty side effects that so far I have not gotten. It is given in shot form once a week. This is after being on revlimid, daratubamab, velcade, carfilzomib and dexamethasone each which stopped working. I’m hopefull I will receive good results. Diagnosed in 2003 and still going strong and staying positive. For the record I’m 77.
I am only taking 2 mg to start due to reaction to Revlimid and doing ok talk to your doctor about possible reduction of dose