What Maintenance Plan, If Any Were You Put On Following Stem Cell Transplant? | MyMyelomaTeam

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What Maintenance Plan, If Any Were You Put On Following Stem Cell Transplant?
A MyMyelomaTeam Member asked a question 💭

My results from bone biopsy I get on 10/24. My DR already said we will put u on a maintenance plan depending on results. Your experience???

posted October 18, 2023
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A MyMyelomaTeam Member

Thank you for responding. Beware velcade has a terrible side effect, neuropathy. I took velcade a long with revlimid and dexamethasone prior to ASCT. I am now living with very severe neuropathy in both feet. It is a nightmare and would be in assistant living if not for the support I have around me.

posted October 18, 2023
A MyMyelomaTeam Member

I took Revlimid daily and got Xgeva monthly. It worked for over 2 years, but MM came back. Then went to Kyprolis and Darzalex. Kyprolis had bad effects on my heart, so I’m now on Darzalex monthly with Xgeva every 3 months. So far it’s working.

posted October 18, 2023
A MyMyelomaTeam Member

After the 100 day recovery period I’m on 10mg Revlimid 21/7, 15mg Dexamethasone (3 little pills) and Daratumumab shot in the belly once a month. Also an Xgeva shot once a month for bone enhancement. Seems to be working at least I’m holding my own until the next ASCT.

posted October 18, 2023
A MyMyelomaTeam Member

Yes I was told that revlimid can cause neuropathy side effects although it is rare. I don't know about memory loss.

posted October 19, 2023
A MyMyelomaTeam Member

Have you heard about revlamid causing pain in hands and feet. And memory loss

posted October 19, 2023

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