My thoughts and prayers are with you. I sure hope Thursday has better news for you.

Yes, our paths sound extremely similar. That is very good to know about the dialysis. We did all the training for peritoneal at home, but we ask to wait until absolutely necessary. He is borderline. We just got new cancer numbers on him. They gave him a week off in his 4-week cycle because he was so exhausted. In that cycle his Mspike went up 11% after only missing 1 week. Prior to that (two months ago), when he was in the hospital twice (once for infection and once for kidney failure), he missed the whole month. His Mspike that time went up 20%. I just don't understand how he can ever be on any reduced dose of chemo and actually seems to need a need chemo cocktail. We meet with the doctor on Thursday.

Louise5, My husband has also been on Cybord +D since January. However he has been off treatment more than on the past 3 months, so we do not know. The MM specialist has recently suggested darz and dex also to our oncology center. Our doc is out of the country for a few weeks so we have nothing until he gets back which is concerning. I wish I had an answer for you. It sounds like we have been down similar paths. Please keep us posted. We are going to try to get a second opinion on the transplant. Will let you know how that goes.
I will say that anything you can do to keep him off dialysis, do it. Dialysis has been more difficult for my husband than the myeloma and we do his dialysis at home now and it is still difficult.

Initally we were told he might qualify, and we went to a myeloma specialist who only treats MM patients and does the transplants. But after some further testing, he said there was too great a risk of irreparable damage to his kidneys even if the transplant helped the myeloma. So, he refused also. My husband has stopped responding to his chemo cocktail after only 8 months. He never reached a remission. And his kidneys have gotten worse also. I am extremely worried. We don't know what the next step will be. Thank you for telling me your story. It is easy to feel alone on this journey.

Louise5, My husband has ersd and is on dialysis ad they had an asct scheduled. They collected his cells but then the new doctors refused to proceed. We are seeking a second opinion.