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A MyMyelomaTeam Member asked a question 💭

did anyone from u my friends do clonoseq? what this result mean: detected below LOD:Range: 0 - <1 Residual clonal cells per million nucleated cells, I appreciate ur answers alll

posted September 29, 2023
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A MyMyelomaTeam Member

That is a good number I think.

posted November 27, 2023
A MyMyelomaTeam Member

Samar, did you call the ClonoSEQ people up in Seattle? Call them. Tell them you want a copy of your report emailed to you. They will send you a consent that you sign electronically. You have to email it back. Then they send you a complete report by email. I do it every year to get my report. I think I had to set up an account with them. But I can't remember. Anyway, call them. They have always been very helpful getting my results to me. I'm dying to know how yours reads😉 Samar Adaptive Biotechnologies is the company you need to call. Phone number on their website. Pacific time of course 👍💕

posted October 1, 2023 (edited)
A MyMyelomaTeam Member

Greetings from Alaska I am presently waiting for my results of my latest ClonSEQ, which I have every six months. Bone marrow biopsy indicate that I am less than 1% myeloma cells. I’m still not MRD negative even though I have no detectable M spike.

posted September 29, 2023
A MyMyelomaTeam Member

Samar, LOD means below level of detection. So you might be right at the cusp of being MRD negative, but it looks like you might still have a stray monoclonal cell around? Please let me know what your doctor says. My report always says how many cells are still present with a big plus sign.

posted September 29, 2023
A MyMyelomaTeam Member

No. I had to Google the meaning.

posted September 29, 2023

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