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What is CCML
Was diagnosed 3 or years ago, was doing effusion therapy but had a anaphylactic shock reaction, was in ICU for three days alone. I swollen up like a dead pig.
No, but we are all praying they will.🙏🏻
Stevon, do you have a nurse navigator to help you find a clinical trial? I know the Multiple Myeloma Research Foundation has them.
Having medium risk Smoldering Multiple Myeloma with genetic deletion 17p TP53 and deletion 13q. I was wondering if anyone has, or is doing any of the clinical trials for medium risk or high risk Smoldering Multiple Myeloma? If so, with good results? Thoughts?
I have a phone call appointment with my SMM specialist in Kansas City the 12th of May and I am going to inquire about clinical trials for Smoldering Multiple Myeloma.
Thank you, Rick
I just discovered I am ultra high risk smoldering MM due to having chromosome abnormalities 1q21, 1q22, and q32. It makes me less likely to benefit from treatment. Looking for best way to deal with it. ANyone have any experience?
I think they can as long as the trial guidelines are followed
Man in the Arena is the story of Jim Bond a patient that lived until recently since 1992. Most current treatments were new and others unavailable. His case was so severe that he was given a short… read more
@A MyMyelomaTeam Member Having high IgA, your question interested me enough to look it up. Here's a link to an article although I'll freely admit I understand about 10% of it at best. Yes, there are… read more
I am not a candidate for stem cell transplant because of my age 80. I guess I’ll just hope that one of these multiple treatments will keep me going for a while longer. One Day at a time. 🙏
