What Is The Best Way To Deal With The Mental And Emotional Effects Of Having Myleoma? | MyMyelomaTeam

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What Is The Best Way To Deal With The Mental And Emotional Effects Of Having Myleoma?
A MyMyelomaTeam Member asked a question 💭
posted August 5, 2023
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A MyMyelomaTeam Member

Lorna one of the ways we deal with it is by counting our blessings. We try to eat well, get exercise, surround ourselves with positive people and energy. We believe in God and have found our spiritual life to be richer and fuller. Take care❤️

posted August 5, 2023
A MyMyelomaTeam Member

God will see us through this and remember it’s just a bump in the road on our journey He loves us so much and wants us to lean on Him!!!
He loves You so very much!!!
Don’t be dismayed or discouraged just look to HIM!!
He’s just waiting for you to come to HIM!!!
In my down time I seek Him with my whole heart,mind, and soul and then I feel much better!!!
I love you my friend and will pray for you too!!!!
We are a family of God and we’re all in this together but we will come out victorious in our battle for He is with us EMANUEL!!!!!

posted August 12, 2023
A MyMyelomaTeam Member

I love hearing that these mm patients in uk are finding a better way I just wished it would make its way quicker to all of us over here in us.
And I need to know why we have to go through relapses on 3-4 different treatments before we can qualify for these new breakthrough drugs that are helping so many right now.

I know by the time you go through just one treatment your body has really taken a toll can you imagine how your body feels after 3-4 more?
It just does not add up to me.
I’m on same induction treatment with no remission just keeping cancer at bay for 7 months since December 2022.

After learning all I can about stem cell transplants today I’ll get the ball rolling just not sure about auto of donor yet.

Regarding stem cell transplants there’s auto meaning your own cells and there’s donor. I’m hearing auto is great because you don’t get that disease but donor remission lasts a lot longer. Are your own cells which is auto stem cell transplants only in remission for so long then your body will start producing the cancer cells all over again so why not take the risk and go for donor cell transplant if the results are a longer remission time? Just a thought to save all the relapses that are occurring in just several months with the auto stem cell transplant.

And just how bad is the risk of donor cell transplants vs auto cell transplants?

Since donor cell transplants seem to be the most successful we need to know what are the risks involved and have patients died from this disease?

Food for thought!

Royal Bee Jelly is great for fatigue and loaded with b vitamins also good for hair. 1-800-543-BEES
I have been taking them since 1994 and love it.

For chemo brain fog I take GNC Ginkgo Biloba 120 mg, Neuriva from Sams and prince of peace ultra ginkgo plus oral liquid 30 bottles 15.00 Amazon helps in place of coffee.

Well I’m learning a lot from reading through all of your questions and answers! I’m so glad I have found this site and had the opportunity to meet and interact with everyone.
Networking is key to a healthier tomorrow.

Diet and nutrition is very important lots of fruits, vegetables and nuts and legumes. Alkaline water and alkaline foods help greatly!!!

So little communication is exchanged from Dr to patient I find due to their busy schedules. And most patients don’t share their personal experiences while In waiting rooms at hospitals. So this has been a God send for me.

Thank you so much for sharing!!!

Please be your own advocate and look out for number one!

Love and take the best care of yourself so you can continue to bless others!!

And most of all never ever give up!!!

You are valuable and greatly needed and God Loves You and so do I!!!!

posted August 16, 2023
A MyMyelomaTeam Member

yes!!! God has blessed me tremendously and getting through daily with this disease

posted August 6, 2023
A MyMyelomaTeam Member

Seriously ill cancer patients go into remission thanks to new drug trials
Jane Kirby

posted August 13, 2023

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