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A MyMyelomaTeam Member asked a question 💭
Janesville, CA

Besides the pain from pathological fractures, etc

July 8, 2023
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A MyMyelomaTeam Member

Definitely! You eat even you’re full😳. It helps kill the cancer cells. I encourage you to just roll with it. I did, gained 40 pounds. Since I stopped taking it, I’ve lost almost 25👏🏽👏🏽👏🏽👏🏽. So the weight will drop off.

July 9, 2023
A MyMyelomaTeam Member

I can only speak from my own experience but I have generalized pain off and on for sure. Because I am 66 I often wonder if part of it is just aging? My muscles hurt - especially my right bicep (am right handed) and that never happened before MM. (I was diagnosed 18 months ago) I get lower back pain a little bit - again, is it just aging? If I try and do any kind of exercise I hurt later! And is it MM or is it from the meds? 🤷🏼‍♀️ I will be one year post SCT on the 26th and will get to stop taking Valacyclovir - hoping to feel stronger with one less medication to affect me! Will be on Revlimid (Lenalidomide) for awhile so that will be the only drug my body will have to process. (I also get neuropathy pain in my feet but it has diminished greatly! Am hoping it will continue to subside.)
What kind of pain are you dealing with? Just an overall ache? D.

P.S. Yes - I am in remission. ❤️

July 9, 2023 (edited)
A MyMyelomaTeam Member

I was dealing with chronic back pain as well as knee pain. I recently lost weight, and lo and behold, much less pain. It’s amazing. I gained 40 pounds from Dexamethasone, since I stop taking it, I took off 24 pounds😲😳

July 8, 2023
A MyMyelomaTeam Member

Generalized aches in nearly every part of my body but my neuropathies have also eased a lot.

July 9, 2023
A MyMyelomaTeam Member

Maybe the Dex is why I am eating anything that is not nailed down.

July 9, 2023

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A MyMyelomaTeam Member asked a question 💭

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