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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
San Antonio, TX

I am post SCT 5 years and have relapsed. Oncologist has never suggested a PET scan. Yet I have heard many MM patients have it done.

June 25, 2023
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Reactions
A MyMyelomaTeam Member

PET scans can tell the difference in new active bone lesions and old inactive ones. The Healthtree Foundation website has a great learning module on bone disease in myeloma. I found it very helpful 💕

June 25, 2023
A MyMyelomaTeam Member

Hi Mother1980, I watched a webinar about MRD negativity. They shouldn't say a person is MRD negative unless they have imaging to back it up.

July 13, 2023
A MyMyelomaTeam Member

My oncologist has me have one every year. It is a good barometer as to what is old and if there is anything new and growing.

August 1, 2023
A MyMyelomaTeam Member

I’m brand new and scheduled to get my first PET/CT scan 7/4. It’s supposed to identify where the cancer is growing (and how much). Think it’s done periodically to see if it’s under control. I’d definitely ask.

June 25, 2023
A MyMyelomaTeam Member

Mine used it to look for bone lesions which thank god I had none

September 3, 2023

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