I’m Getting Neuropathy From Velcade, I’m Being Changed To Darzalex . Anyone With Feedback On Side Effects? Thanks | MyMyelomaTeam

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I’m Getting Neuropathy From Velcade, I’m Being Changed To Darzalex . Anyone With Feedback On Side Effects? Thanks
A MyMyelomaTeam Member asked a question 💭
posted June 21, 2023
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A MyMyelomaTeam Member

My initial treatment included Velcade and darzolex pro with revlimid. After SCT I’m in remission for now but as a high risk genetics patient my maintenance treatment is revlamid 15 mg and monthly darzolex pro. I get none of the bad side effects from the darzolex that I had my first 6 months of treatment. Intense nausia and vomiting, bad neuropathy and unbearable fatigue Now I have very minimal occasional issues but nothing like from the Velcade.

posted August 6, 2023
A MyMyelomaTeam Member

Hi Dawn, you will have to have a discussion with your doctor. Velcade works well on myeloma, but the neuropathy can be debilitating. 😥

posted August 15, 2023 (edited)
A MyMyelomaTeam Member

I got Neuropathy from Velcade in 2012, I started talking vitamin B-12 and it is helping me better than Gabapentin.

posted August 24, 2023
A MyMyelomaTeam Member

I put detox for patches on my feet to draw out excess chemo if I notice leg or nerve problems
Drink lots of water even berry frost pedialyte helps eat apples

posted January 4
A MyMyelomaTeam Member

I stopped Velcade 1 month ago due to increasing neuropathy. Is Darzalex an alternative to Velcade? I will ask doctor about it , because I don’t want to diminish my cancer treatment if Velcade or alternative is necessary to get to remission.

posted August 14, 2023

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