I have been in complete response (remission) for a year; I take a maintenance dose of Revlimid 10 mg for 21 days and 7 days off
Question: I have complete loss of appetite on Revlimid. This has intensified over the year. I’m underweight. Food turns my stomach. Nothing tastes good. I always feel as if i’ve just eaten a large meal with cheesecake dessert.
Haha. Yes. I can eat all the dessert I want - who ever thought I wouldn’t relish the idea?
Question 2: Do others in this group who have… read more
Thank you. I will!
Diane9,
You should be friends with @A MyMyelomaTeam Member, she’s an Equestrian too.♥️
Paula 🌹
Hi Diane, Glad you found the site a lot of good information. I’m farmette I live on farm Sanborn NY, north of Buffalo, 5 miles from Canadian border. Had horses all my life from age 9 in Connecticut. Use to show A rated jumping, driving horses. Miss my horses and cows. Doctor has restricted me can’t ride because of bone damage ribs and hips from MM. I’m very familiar with Davenport we had vacation house in Dundee. I also have problem with not being hungry it’s a problem on chemo but; Doctor says have to eat 3 meals of something a day. I try to eat very Healthy and get enough exercise every day to keep muscle strong. Get plenty of rest so I feel good. I lead a pretty normal life since having the stem cell transplant. I’m on 14 days 10 mg relivimd, 14 days off. I had too many side effects body with higher dose. Takes awhile to adjust to all of this. Hang in there take one day at a time. Best wishes.
Talking with your doc I always a good choice. Adding a palliative care doc to the mix is invaluable
Good morning! That’s Stetson triple register paint. Yes, I am in remission Doctors like to refer to it as Sleeping (my MM not curable) but; no sign of it been in remission since 2019.
Do Some Of You Feel Like ,nothing Tastes Good Or You Just Feel Not Wanting To Eat At All?
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