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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

.Loss Of Appetite

A MyMyelomaTeam Member asked a question 💭
Davenport, FL

I have been in complete response (remission) for a year; I take a maintenance dose of Revlimid 10 mg for 21 days and 7 days off
Question: I have complete loss of appetite on Revlimid. This has intensified over the year. I’m underweight. Food turns my stomach. Nothing tastes good. I always feel as if i’ve just eaten a large meal with cheesecake dessert.
Haha. Yes. I can eat all the dessert I want - who ever thought I wouldn’t relish the idea?

Question 2: Do others in this group who have… read more

June 14, 2023
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A MyMyelomaTeam Member

Thank you. I will!

June 17, 2023
A MyMyelomaTeam Member

Diane9,
You should be friends with @A MyMyelomaTeam Member, she’s an Equestrian too.♥️
Paula 🌹

June 15, 2023
A MyMyelomaTeam Member

Hi Diane, Glad you found the site a lot of good information. I’m farmette I live on farm Sanborn NY, north of Buffalo, 5 miles from Canadian border. Had horses all my life from age 9 in Connecticut. Use to show A rated jumping, driving horses. Miss my horses and cows. Doctor has restricted me can’t ride because of bone damage ribs and hips from MM. I’m very familiar with Davenport we had vacation house in Dundee. I also have problem with not being hungry it’s a problem on chemo but; Doctor says have to eat 3 meals of something a day. I try to eat very Healthy and get enough exercise every day to keep muscle strong. Get plenty of rest so I feel good. I lead a pretty normal life since having the stem cell transplant. I’m on 14 days 10 mg relivimd, 14 days off. I had too many side effects body with higher dose. Takes awhile to adjust to all of this. Hang in there take one day at a time. Best wishes.

June 14, 2023
A MyMyelomaTeam Member

Talking with your doc I always a good choice. Adding a palliative care doc to the mix is invaluable

June 15, 2023
A MyMyelomaTeam Member

Good morning! That’s Stetson triple register paint. Yes, I am in remission Doctors like to refer to it as Sleeping (my MM not curable) but; no sign of it been in remission since 2019.

June 15, 2023

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