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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I’ve Been Put On 10mg Revlimid. Has Anyone Else Been Put On These, If So How Have People Found Them?

A MyMyelomaTeam Member asked a question 💭
Hereford, UK
May 26, 2023
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A MyMyelomaTeam Member

I'm late to this reply lol, but just want to throw my two cents in here. I'm on 10mg lenalidomide (generic for revlimid). lena costs me a $10 copay compared to $80 for revlimid. anyway, I was having the usual diarrhea. I found out lenalidomide causes bile acid malabsorption. when I read the symptoms of BAM, I had them all! my oncologist prescribed me colesevelam. I'm back to no diarrhea. it took me a few weeks to figure out the amount that wouldn't constipate me, but it works for me.

July 20, 2023
A MyMyelomaTeam Member

I am on 10mg of Revlimid after stem cell transplant in November
Doing ok apart from tiredness 21 days on then 7 off I am high risk so thankful it will hopefully keep me in remission for some time yet

June 6, 2023
A MyMyelomaTeam Member

I was taking Revlimid 25 mg. since 2020. I read that it is very effective for MM stage III. I did stem cell transplant. My Revlimid dosage is 10 mg since August 2021 (SCT). Diarrhea, tiredness, and little appetite. I choose for myself to stay on it as my maintenance medication. I just want to stay in remission. I am on it 21 days and off for one week. Before transplant I took the stronger dose every day... 6 rounds of chemo.... Every person's body chemistry is different. I wish you the best in your journey.

May 31, 2023
A MyMyelomaTeam Member

My husband is on 10 mg of Revlimid since last fall. So far he is doing good. Tired & his feet & legs hurt but I think that is more from the chemo last year.

May 27, 2023
A MyMyelomaTeam Member

The 10 mg dose helped keep my hubby’s numbers good. He is on 5 now and still has some issues with diarrhea.

May 26, 2023

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