Hi Deb, if they told me a SCT would be a definite cure, I would do it. But it’s another way to try and keep you in remission. My friend who also has myeloma has decided to do a SCT once he is done with his induction therapy. It’s a very personal decision. I am hoping it’s not a last resort for me, as I am getting closer to the age where it is no longer feasible. My MM oncologist specialist assures me I have many years until that. There are so many new drugs for MM, my oncologist who administers the treatments, feels we have many options if I go out of remission. It’s nice having 2 doctors. I see my MM specialist every 3 months, and see my regular oncologist monthly when I get my treatment. Honestly I have tolerated my treatments quite well, with very little side effects, so far. Best of luck to you. I know how scary it is!
No SCT - 3 months Induction- 4 months reduced maintenance - Complete Remission- 3 quarterly clonoSEQ tests are MRD Negative- been off All MM Meds for 9 months as per MRD-SURE - excellent Labs - details at my Story @A MyMyelomaTeam Member
When you get to MRD Negative - get off All MM Meds. Search for video 2022 ASH Conference MRD2STOP - new pathway to maintenance
How do you know you achieve remission? Blood, or BMB?
I am in what is called serological remission. For now I am doing monthly therapy, and am hoping to not do a SCT. My induction therapy was 16/weekly cycles of Dexamethasone, daratumab, and Velcade. Now I have been doing that same drug regimen monthly. It’s scary each month waiting for my blood test results, to see if I have stayed in remission. I know there are so many new drugs, to hopefully keep us in remission.
I achieved remission early into induction.
Remission was determined through blood tests. I have had only one bmb...to find out that I did indeed have MM. I guess some practitioners have different ways of checking.