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A MyMyelomaTeam Member asked a question 💭
Lincoln, NE

Does anyone else have blurry eyesight? After the chemotherapy for my sct my eyes are so blurry and I can’t see to read small print. I have to use a magnifying glass. I used to read a lot but now not so much. I use my iPad because I can enlarge the print. My eye doctor says it is dry eye.

February 25, 2023
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Answer Summary

Members widely confirmed experiencing blurry vision after chemotherapy and stem cell transplant, with many describing dry, gritty, burning... Read more

Members widely confirmed experiencing blurry vision after chemotherapy and stem cell transplant, with many describing dry, gritty, burning eyes, difficulty reading small print, and the need for magnifying glasses or enlarged text on devices. Several members shared that specific medications like Velcade, Revlimid, and steroids contributed to rapid cataract development, with some finding significant improvement after cataract surgery that restored vision to 20/25, while others noted their vision stabilized or improved after stopping certain treatments like Ninlaro or Velcade. A recurring theme was the importance of regular eye exams to monitor changes, using preservative-free eye drops for dryness, and understanding that blurred vision can be both a medication side effect and a potential sign of active disease.

A MyMyelomaTeam Member

I had cataracts before I was diagnosed with multiple myeloma but they weren’t bad yet. But after my transplant my eyes just seem to get worse and worse fast. So I went back to the eye doctor and they scheduled me for cataracts surgery. So, last Monday I had my right eye done. And boy I can see so well out of my right eye it is 20/25 now! I’ve worn glasses since I was in the seventh grade. I’ll have the left eye done in about three weeks. So I suggest that you keep getting them to check your eyes because if they’re like mine it went by fast.

February 26, 2023
A MyMyelomaTeam Member

While I was in my initial treatments with Darzalex, Revlimid, Valcade and Zometa, I didn't wear my contacts and I couldn't see out of my glasses. I had asked my dr and she said to postpone making the annual trip to the eye dr, but then I had an eye infection (which might have been a side effect) but the initial treatments my dr put me on didn't heal it so I was referred to my eye doctor (and then to an opthomologist - took about 4 attempts of treatment before I got one that worked). My eye doctor also said to go ahead and check my eyes and update my glasses. He was also seeing cataracts that he wanted me to check with the oncologist just in case I needed to have cataract surgery while being treated for MM. Anyway - after my SCT and going into remission, I went to update my contacts and the result of that trip was I needed to change my glasses prescriptions (and it was with in the 6 months warranty - so no cost) and the cataracts were not a concern anymore.

April 27, 2024
A MyMyelomaTeam Member

Cat, I have blurry vision. I've had dry eyes too. I think it's a side effect of the revlimid, or velcade. Some days are better than others.

August 3, 2023
A MyMyelomaTeam Member

I had cataracts and horrendous floaters, and had a macula hole.
And vitriol were removed.
Two week ago my ugly floaters (mosquitoes, spider legs, lines, or black shapes) were removed.
My vision came better.
I was before the surgery in need to go to occupational therapy for my eyes; Farther and closeness vision exercises helped a lot.

For the headaches Botox shots.

March 4, 2023
A MyMyelomaTeam Member

Hi Susan
The eye doctor says I have baby cataracts but not ready for removal yet plus dry eye i belies from the chemo and velcade. Hope you are doing well! Hoping spring is around the corner. We are supposed to have a thunderstorm (I live in Lincoln Ne) today which is much better than snow 🙂

February 26, 2023

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