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A MyMyelomaTeam Member asked a question 💭
Fort Frances, ON
December 24, 2022
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Answer Summary

Members shared widespread experiences with teeth crumbling, breaking, and falling out in pieces, with many attributing the problem to... Read more

Members shared widespread experiences with teeth crumbling, breaking, and falling out in pieces, with many attributing the problem to medications like Zometa and dexamethasone, multiple myeloma itself leaching calcium from bones, and the challenges of finding dentists willing to treat cancer patients. Several members highlighted practical strategies including using PreviDent high-fluoride toothpaste without rinsing before bed, taking calcium with vitamins D3 and K2, using prescription mouth rinses, and seeking oncology dentists who understand the serious risk of osteonecrosis of the jaw and infection from tooth extractions, particularly in the lower jaw. A recurring theme was the fear and frustration of watching teeth deteriorate despite treatment, the high cost of dental work on fixed incomes, and the importance of self-advocacy in educating both oncologists and dentists about the connection between myeloma treatments and severe dental complications.

A MyMyelomaTeam Member

Thanks I sure hope the dentures make it so I can chew a big TBone steak.

April 5, 2023
A MyMyelomaTeam Member

Yeah Darrell I can eat pork steak but have a hell of a time trying too eat a beef steak. I am the same way with peanuts and hard candy but I can crush peanuts between my one upper and lower molars on the right side but they sometimes stick in the back of my throat. I eat a lot of sandwiches,soups,mashed potatoes etc. I only have seven teeth on the top and six on the bottom so they don’t mesh very well. I am going too get dentures after the dental surgeon pulls my upper teeth but won’t pull the bottom ones because I could get a lower jaw bone infection so I hope once I get my dentures I can chew better. My teeth started going in 2015.

April 3, 2023
A MyMyelomaTeam Member

Good advice and they really don’t want you getting teeth pulled in the lower jaw because of risk of infection because the lower jaw doesn’t have enough blood flow too promote healing that well.

February 12, 2023
A MyMyelomaTeam Member

I am so glad your dentist knows about MM. It is too scary and we can be too accepting of things we are told. Ed cannot have any teeth pulled because he already has ONJ. That started after a dentist in the same practice as the dental surgeon with MM knowledge pulled a tooth. Sad that he didn't get the right surgeon the first time. When we were told to have all dental work done before SCT, we did that, but did not realize about the serious side effects of Zometa. On the occasion that he does have to see the DS, the dentist brings everyone in to the room to discuss Myeloma and ONJ. Everyone!!! Receptionists, nurses, hygenists. He is training people and maybe that can help someone in the future.

May 8, 2023
A MyMyelomaTeam Member

Wow! I only lost 3 teeth two lower molars and one top molars. Wish you the beat with new dentures and that porterhouse steak 🥩

April 5, 2023

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