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Bone Survey Results
A MyMyelomaTeam Member asked a question 💭

Notation says: "Innumerable lucencies suggestive of myelomatous involvement of calvarium." Looks like myeloma hit skull. Sounds like nothing can be done with this. Thoughts, comments?

posted December 23, 2022
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A MyMyelomaTeam Member

Myeloma treatment, bisphosphonates or Xgeva should help. Calcium and D3 should help. Do you know how long they have been there? Do they hurt? Sending hugs 💕

posted December 24, 2022
A MyMyelomaTeam Member

That’s what happened to me as well. It wasn’t until I went to a university teaching hospital that they identified my broken back and my multiple myeloma. I couldn’t even walk by then! Good luck!

posted July 13, 2023
A MyMyelomaTeam Member

My back broke 4 months ago my l 4 I called a ambulance and went to er. They told me nothing was wrong and sent me home. Two weeks later my back broke again. I went to the er again. They said the only thing they saw was that my had been broken two weeks against I saw a Nero surgeon and got a mri and my back has burst. I have been in a body brace for almost four months

posted December 31, 2022
A MyMyelomaTeam Member

Teresa, there is a video on bone disease and imaging on Healthtree University. But I am honestly confused still about how they can differentiate between old and new lesions and ones that are healing. I had two bone surveys and two PET scans in 2017. Just showed a lesion on my 10th rib. I haven't had any other imaging except for a couple of chest CTs for pulmonary nodules. It's always something🙄. But my appendix decided to rupture during the height of the pandemic in 2020. So that CT showed lucencies on my pelvis??? I still don't know what that means. I asked my myeloma specialist, he said that just happens with myeloma. What kind of answer is that?? Anyway. I hope yours are healing and you don't get any new ones🙏

posted December 25, 2022 (edited)
A MyMyelomaTeam Member

Thanks DonnaAndrew. I have no idea how long they've been there! Nothing hurts. I saw a comment on this site awhile back (which could have been made by you), about bone surveys. I brought it up to my doctor that I had never had one. I've had PET's and MRI's, but I told him I wanted the "Survey." Geeezzzz, the survey found this in the skull. Doctor keeps saying I'm doing "very good" with a 0.2 monoclonal protein level, but every few months, there's more bone damage found. I'm not understanding why the bones are still being eaten away. Guess I'd better find a way to "rephrase" my questions to him. Thanks for responding to my post!

posted December 24, 2022

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