I started treatment with a 3 cocktail mix of krypolis,revlimed and dexamethasone. Diagnosed in September of 2019 at 65 years old. Nothing medically was worse than receiving that diagnosis. I came home and looked for information about MM. I saw the stats that said 3–5 years mortality based on type and progression of the disease. Well, I want to tell you I’m a living witness that info is incorrect. Joining this group has given me so much accurate information and access to people that have been dealing with this demon for 20 years or longer. To answer your question stay prayed up, assemble a good care team. Keep moving and keep living. This is NOT the end of the journey we call life.

Wow Ed. You are doing fantastic 👍💕

Everyone is different. It's hard to say. Your doctor is the best person to discuss this with. Your journey will depend on so many things. Read what you can and ask questions. I don't know what my own outcome will be. Try to stay positive and live each day to the best of your ability.

I had the KRD in the beginning before my SCT I have stage 2 with a 17p mutation and I think 14 . I had no issue with Kyprolis but after my stem cell they gave me a dose for insurance with Revlimid. But I have a severe treaction to the K and it cause micro hemmorragic bleeding causing my platelets to go to 14 and dropped my HGB and HCT. I can't take it and I am ok. In fact I walk daily go to yoga and feel really good. Diagnosed in Nov of 2020. Just on the REvlimid 10mg and tons of vitamins and herbs

I had some slight burning if they used the vein in the bend of my arm. Once they moved it to a more flat vein the burning went away. They also increased to 30-min infusion which helped as well.