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A MyMyelomaTeam Member asked a question 💭
Hamilton, OH
September 5, 2022
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Answer Summary

Members overwhelmingly confirmed that multiple myeloma is currently not curable but highly treatable, with many sharing that patients are... Read more

Members overwhelmingly confirmed that multiple myeloma is currently not curable but highly treatable, with many sharing that patients are living 10 to 20 years or longer thanks to rapidly evolving therapies like CAR-T cell treatments, stem cell transplants, and newer drug combinations. Several members described achieving complete remission or stringent complete response through treatments such as ABECMA CAR-T therapy, with one member celebrating being declared cancer free and another reporting no detectable plasma cells after CAR-T, while emphasizing that each person responds differently to medications and clinical trials. A deeply recurring theme was the intertwining of medical hope with spiritual faith, as members organized daily noon prayers for a cure by year's end, shared scripture about divine healing, and expressed gratitude for both medical advances and God's presence in their journeys through remission, relapse, and the daily challenges of managing a chronic disease.

A MyMyelomaTeam Member

I don't know about curable but after being diagnosed stage 3 with 90%+ involvement in my marrow, I was just deemed sCR! that means not only can the cancer not be detected but the genetic defect that lead to it cannot be detected! Very deep remission or possibly cured. 🤔

July 26, 2023 (edited)
A MyMyelomaTeam Member

I know the longer we live the closer we come to curing cancer! I was fortunate enough to have been treated with the ABECMA CARR-T-CELL TRANSPLANT! In a few months, I was declared in COMPLETE REMISSION, and was also declared CANCER FREE! Praise GOD!
We are experiencing miracles everyday, cures are just around the corner! Please, keep the faith and keep the HOPE which is alive in JESUS CHRIST!

April 8, 2023
A MyMyelomaTeam Member

Life is truly a blessing! Each moment enriches the next! GOD has given us miracles, that allow each of us to experience life uniquely! GOD is so wonderful to us!
I praise GOD for each moment I am allowed to experience this beautiful thing called life

April 15, 2023
A MyMyelomaTeam Member

MM is not curable, but it is treatable.

August 8, 2023
A MyMyelomaTeam Member

I was told by my oncologist that MM is not curable, but treatable. I had all the treatments, SCT, IV infusions, pills, hair loss. I'm now at the point where I don't take any medications and I get a blood test every 3 months. However after my last blood test my oncologists wants to see me. My appt is in 2 weeks. I'm trying not to worry about it, I have enough "leftover" stem cells stored from my SCT if it turns out I need another one, but I'm hoping I don't.

June 12, 2023

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A MyMyelomaTeam Member asked a question 💭