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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Would Like To Know When Do You Start To Feel Better After The Stem Cell Transplant?

I Would Like To Know When Do You Start To Feel Better After The Stem Cell Transplant?

posted about 1 month ago
A MyMyelomaTeam Member said:

Hi Jeanette. I was very tired for 3-4 months, and barely read or watched TV. I lost my appetite and taste. I was a lump. I am now approaching 6 months and I FEEL GREAT. I am swimming and walking a bit each day, and going to PT twice a week for my back. I feel so good I moved up knee replacement to August 31.
Everyone is different, but don’t get dismayed. Measure progress by weeks and try to stay positive.

posted about 1 month ago
A MyMyelomaTeam Member said:

Although the majority of people I've heard from who underwent the SCT would probably agree with the timetable being discussed, mine was a little different. I was very fortunate that my SCT in 2018 wasn't that bad of an ordeal. I was only in the hospital for two nights and it wasn't anywhere as bad as I'd heard. Never got sick from the chemo (only queasy), my platelets came back much quicker than normal and I needed no transfusions. At three months I feel I was at about 60% normal. I was very blessed to be a 68 year old, otherwise healthy male at the time and I'm sure that made a big difference. I asked my oncologist if I could join some friends on a hike up and down the Grand Canyon at about 5 months and she looked at me as if I was crazy (and then said "no way"!). My only downside was the neuropathy in my feet from the chemo (Melphalen) that they give you prior to the re-introduction of your stem cells. I have tried everything to help that but no luck so far! There's been no hiking lately!
Good luck to you. You're asking the right questions. I wanted to answer you so you'd receive a different perspective on the procedure.

posted about 1 month ago
A MyMyelomaTeam Member said:

It took me awhile to feel better. The chemo before it was really bad and afterwards I couldn't eat. I basically had soup and Ensure shakes. If you want to lose weight, it g eloped me as I went from 190# down to 120# in 5 months.
Let's be honest, it will take a lot out of you. Praying for. 🙏

posted about 1 month ago
A MyMyelomaTeam Member said:

Someone posted this recently(Annette). I like this analogy because I think it was pretty true for me anyway. You feel 30% at 3 months, 60% at 6 months, 90% at 9 months. I had Cytoxan for stem cell mobilization. I think I would have been lots better had I not had that as well as the transplant. I hope this helps 💕

edited, originally posted about 1 month ago
A MyMyelomaTeam Member said:

It does take 4-5 months. Or at least did for me

posted 25 days ago
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