How Many Of You Had Neuropathy When You Had MGUS, And Where Did You Have It? | MyMyelomaTeam

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How Many Of You Had Neuropathy When You Had MGUS, And Where Did You Have It?
A MyMyelomaTeam Member asked a question šŸ’­
posted August 14, 2022
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A MyMyelomaTeam Member

My b vitamin levels were all normal. Mine started as pins and needles, then progressed to severe burning within a few weeks, then a few weeks later I had weakness in my legs. Actually had a work up for multiple sclerosis and found the IGg Kappa and abnormal kidney function tests. Given an MGUS diagnosis by the neurologist and referred to the cancer center to see a hematologist/oncologist. Good luck to you! Iā€™m new to this journey and just trying to learn as much as I can.

posted March 8, 2023
A MyMyelomaTeam Member

Greetings from Alaska I did not experience neuropathy while I was diagnosed MGUS but once I started medication for multiple myeloma I experienced neuropathy in my feet and fingertips.

posted August 14, 2022
A MyMyelomaTeam Member

Yes, a year or so before a diagnosis of MM. In one of my legs, below the knee. Minor episodes that didn't continue.

posted March 12, 2023
A MyMyelomaTeam Member

It was peripheral neuropathy that led to my MGUS diagnosis. It started in my feet, and spread to my lower legs and hangs/wrists.

posted March 8, 2023
A MyMyelomaTeam Member

Yes, I got peripheral neuropathy when I had MGUS. Very mild. But on reflection, this was the first sign of anything wrong. Minor paraesthesia in my lower leg. Only happened maybe 5 times, but enough to wake me up. At that time I had not been diagnosed with MM and had taken no medications.

posted January 2, 2023

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