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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Many Of You Had Neuropathy When You Had MGUS, And Where Did You Have It?

How Many Of You Had Neuropathy When You Had MGUS, And Where Did You Have It?

posted about 1 month ago
A MyMyelomaTeam Member said:

Greetings from Alaska I did not experience neuropathy while I was diagnosed MGUS but once I started medication for multiple myeloma I experienced neuropathy in my feet and fingertips.

posted about 1 month ago
A MyMyelomaTeam Member said:

Have developed neuropathy after being on Revlimid for several months, which also does weird things with my taste or rather flavor of foods.

posted 22 days ago
A MyMyelomaTeam Member said:

I've only had neuropathy after receiving velcade, sometimes before I even left the building and it would subside pretty quickly. I already have some 'restless leg' later in the evening when I'm 'shutting down' and it's time to go to bed so sometimes the neuropathy would make that worse. Now that Im not on velcade, it seems to be only the restless leg. I also have diabetes, in pretty good control, so I don't know which came first the chicken or the egg.

posted about 1 month ago
A MyMyelomaTeam Member said:

Thank you for sharing and I'm glad you no longer have to receive the Velcade. It really does help to know because one may experience it while undergoing chemo or after stopping (a side effect kind of thing from it).🌻

posted about 1 month ago
A MyMyelomaTeam Member said:

I was diagnosed in 2015 with MM...and have neuropathy in my feet which I'm sure is from the meds!!!

posted about 1 month ago
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